Hi Headway friends, hoping you can help me with a little feedback,specifically regarding a condition I acquired after a brain haemorrhage

[Smilerdi]

caused by an AVM.

The condition is Homonymous Hemianopia which in plain English, is 50% sight loss in both eyes (either right or left side vision loss). It prevents you from being able to drive, sadly.

So if I was to ask those of you with this condition the following question, how would you respond?

"If you have suffered a brain haemorrhage which resulted in a loss of vision(or partial vision), did the vision return? if so, how quickly? "

Outcome options:

1. Yes - vision returned within 6 months of initial loss

2. Yes- vision returned between 6-12 months of initial loss

3. Yes- vision returned in excess of 12 months from initial loss. (Please state time period of sight loss)

4. No- vision has not returned , initial vision loss occurred during the last 12 months

5. No- vision has not returned , initial vision loss occurred between 12 -24 months ago

6. No- vision has not returned , initial vision loss was in excess of 24 months ago

I would be absolutely delighted to hear from any fellow sufferers who have also had this condition.

THANKYOU so very much .

Kind regards

[cat3]

Sorry, Smilerdi, can't help with this. My sight was only marginally affected by a subarachnoid haemorrhage in dec. 2011. What I wanted to say is that Headway website has not been responding for several hours and It's only now (10.30pm) become accessible again, so you mightn't receive replies 'til tomorrow. Best wishes cat x

[cat3 in reply to cat3]

PS I like the passion flower. x

[Smilerdi in reply to cat3]

Thanks for the info Cat, glad you liked the flower too, its from my garden.

will try and patiently wait for responses!!

[crissy4361]

Hi Smilerdi,

I had initial loss of sight in my right eye following my SAH in Jan 2012, it returned within the first month however there has been a gradual deterioration in my sight since then which has resulted in two new prescriptions for glasses. Hope that is useful.

[Smilerdi in reply to crissy4361]

Thanks very much crissy for your feedback. much appreciated.

[dazzzler]

Hi,

I had a very nasty motorcycle accident in Sept 2009 which resulted in very similar sight loss to you. I have no right side vision in either eye - 50% loss. That's getting on for 4 years and no real improvement.

I'm told its to do with the visual cortex of the brain, and its almost always the right side that goes.

I was lucky to get a referral to Moorfields in London, they did all sorts of tests, but advised it was very unlikely that my sight would return.

Like you said, driving is impossible, reading is slow and laboured, coping in crowds of people is very stressful but I got back to work three years after the accident via public transport, and as I am registered disabled due to the sight loss I do get some help with costs.

The brain is a very adaptable thing and you find ways round things, your hearing becomes more attuned for starters.

Have a look here for more info...

readright.ucl.ac.uk/help/h_...

[Smilerdi in reply to dazzzler]

Hi Dazzzler

I really appreciated hearing news of your similar experience,thanks so much for taking the time to share your story.

The outcome of the Morefields testing you had has been really helpful to hear, as it would seem to close the door on my sight returning too.

I'm really pleased to hear you managed to get back to work, that's a great achievement. I've made a similar life choice, inasmuch as Having started a phased return back to work 8 months after my brain haemorrhage, and four months in I'm up to four days per week. I've asked to return to a job grade one lower than my previous role to allow me to focus on recovery, and my health primarily. It's been a very wise decision so far. I do feel rather a miracle to have made such amazing progress, God has been a great enourager , and clearly has not finished with me yet!! You too sound like you've experienced an amazing journey.

I agree with you on the crowded places, it's a no- no for me too. I couldn't read for the first two months due to blurred vision, and the vision loss, but somehow I adapted and the blurring cleared and I became able to read, though excessive reading brings on mental fatigue. Thanks for the weblink to the read right therapy, it looks really interesting and I plan to give it a go . Did you find it improved your reading speed in any way?

Thanks once again for your response.

??

[vjones2]

i poste this on a stroke bit but it about both

his isant about me, but a man who had hemmorage and stroke around same time as me he lost his sight he was into cars old 1s couldnt drive so hit im very bad, but he carried on they dis some operation in walton not saying hes driving but hes seeing not bad if this helps i hope for you they rote big word on mine but i can see with glasses i put that bit getting older, i need new ones now ok bad day here but i no good days bad days and no these glasses no good now on good day, get better x