venesection: advise please i have just... - Haemochromatosis ...

Haemochromatosis Society UK

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venesection

alfiepdoodle profile image
4 Replies

advise please i have just had my third session and i am finding i feel very light headed and dizzy the afternoon of the procedure and completely exhausted and spaced out the next day then right as rain the day after

does anyone else experience this and if so what have you done to combat it or do i just have to live with it

thank in advance

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alfiepdoodle profile image
alfiepdoodle
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radd profile image
radd

alfiepdoodle,

Those were my exact experiences also but it eventually improved.

Now I may feel a little tired on the venesection day so I always try to get a late afternoon appointment but after a good nights sleep I am fine the next day.

alfiepdoodle profile image
alfiepdoodle in reply toradd

how many sessions did it take for you to feel better please and how much weee they taking each time 500 ? Someone has suggested 250 might be better for me but it would take so much longer to get stable

radd profile image
radd in reply toalfiepdoodle

alfiepdoodle,

Yes, they will take less if you are struggling but I stuck with 500ml as wanted to achieve to ‘maintenance’ level more quickly too.

Except now I realise it doesn’t always work like that as a couple of times ferritin levels went up directly after venesection!! 😳😮

There was no sudden improvement in how I felt after venesection but a gradual progress over probably the first year. I still don’t drive after even now as can feel wobbly.

alfiepdoodle profile image
alfiepdoodle in reply toradd

thank you i will monitor how i go and reduce if needs be

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