I am 67 years old and was diagnosed with skin cancer in 1972.Ever since then i have had about 50 lesions,they have all been positive BCC,s.My last session started in November 2013 and finished after 14 months.I started with 2 suspected lesions,both were found to be positive and were eventually removed.During this period another 2 appeared now totalling 4.Bi-ops were taken and both were found to be positive.One of the lesions was on the right side of my nose,that was the second time in the same place, but ,during the period of ops another lesion appeared on the same place.This was the 3rd in the same place.Sum total in last session,7 positive BCC,s,7 ops. I am explaining this way because in the past from seeing my GP to completion of plastics it took 4/5 weeks.I bought this fact up last November to a dermatologist i was seeing and was told i must of slipped through the net.At the same time she asked if i had been tested for Gorlin Syndrome,my immediate question was,"whats that". Never heard of or been asked about it before.I have now been diagnosed with it,only took 42+ years and with reading a few threads,this is to my mind an extreme amount of time to "slip through the net". I do have 2 (Doctors words) massive cysts on my jaw of indeterminate age,have signs on my hands as well.I have also had impacted wisdom teeth removed about 25 years ago,i believe this is another sign of Gorlins.About half of my teeth have mysteriously GONE so i can only suspect this may be another symptom.Have any of you had a similar experience and what would i now expect from the medics.
My treatmeent up to 2013 has been,on the whole,very good although i did have a lesion on the outer side of my right eye.I went to my GP(got rid soon after) and he just put it down as me being neurotic.When i eventually got treatment,3 months,i was told my sight would of been drastically affected within the next few weeks if it had not been removed when it was,a possibility of loss of sight were the exact words.
I will now shut up but will welcome any comments and hope this is a lesson as to what is and isnt possible