Hi. My son (now 12) was diagnosed with Gorlin Syndrome 3 years ago and has been having Jaw cysts regularly removed ever since. So far, no-one has mentioned seeing a dermatologist, but everything I read suggests that he should be seeing one. I am starting to worry that this could cause problems for him. What are other people's experiences please? We have had so little information and feel very unsure what to expect.
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