The results of the Gorlin Syndrome survey will be published early to mid July 2013. Currently the data is being finalised but I can confirm that there has been some interesting feedback. We hope to be in a position to post results shortly. Thanks to everyone who took part.
Gorlin Syndrome Group Survey findings... - Gorlin Syndrome G...
Gorlin Syndrome Group Survey findings to be published shortly
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How long did it take for you to receive diagnosis of Gorlin Syndrome?
How long did it take from first presenting with symptoms to being diagnosed with Gorlin Syndrome?
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