I'll try and write this really briefly. I have had chronic IBS since 2 years old (constipation) and I've had additional symptoms for the last 10 years too (I'm 21). I ended up going to endocrinology and they found I had a bad b12 deficiency and now I'm on injections for the rest of my life, we still don't know why I have this. I also keep getting borderline vitD deficiencies. My gran has coeliac disease and I have been tested several times, the endo sent me to a gastroenterologist, had an endoscopy to test for this and it was negative but most symptoms did point to CD. They signed me off a while ago.
During my last appointment with my endo (3 and a half months ago) he mentioned an expert is rare bowel diseases at gastroenterology at another hospital that I could ask my GP to see if I wanted but he didn't seem too bothered. That day I also got tested for Vitamin D def again and I asked to have my B6 tested. 6 weeks after this I got a letter saying I was borderline in VitD again and gave some vitd pills, they never mentioned the B6. That was it.
Now today, 3 and a half months after the endo appointment, I get a letter from my GP saying the endo has referred me to the rare bowel disease guy, basically another referral to gastroenterology. I know he mentioned this in the appointment but I don't understand why he would suddenly decide to refer me so long after our appointment? Why wouldn't he mention it along with the vitD letter? Also he's sent me to a gastro before and they signed me off saying there nothing really they can do and that my symptoms seem managable (which to be fair they are, I'm in a good laxative routine). Does this imply that perhaps my b6 result was bad? I'm just finding it a bit unsettling that I've seen referred to a department and its not entirely clear why?
Thanks for reading, I did try and keep this short!