New Reaction to gluten.: Hi. I hope you... - Gluten Free Guerr...

Gluten Free Guerrillas

10,815 members4,408 posts

New Reaction to gluten.

NinaG profile image
6 Replies

Hi.

I hope you can help. I am a coeliac and recently I have had two nasty reactions to cross contamination weeks apart but the results were nothing like I ever experienced before. Is this a sign of a worsening condition or is it because I have been of gluten for over 8 months and I have shocked my body. I suffered extreme fatigue and I was violently ill for hours. It took me two days to recover. This was not the norm for me It usually only took one day and I was myself again. Please Help.

Thanks

Written by
NinaG profile image
NinaG
To view profiles and participate in discussions please or .
6 Replies
Grew profile image
Grew

It seems to take longer and longer when I am accidentally glutened. I don't get back to normal for months now. Eleven years on gluten free diet. The malabsorption lasts forever.

Regalbirdy profile image
Regalbirdy

Hi NinaG

What you have experienced is fairly common.

The longer you are gluten-free, the less antibodies to gluten you have in your system - so the stronger you react to each gluten exposure.

I've also experienced symptoms pretty similar to those you describe. In my case it took me around 10 days to recover - and felt a little like having flu combined with a nasty stomach bug. The first 48 hours were the worst.

Accidents do happen, however careful you try to be. I think of it as a trade-off for feeling better the rest of the time.

I hope you're fully recovered now.

When I was diagnosed I was told by my consultant that the longer I was GF the more sensitive I would get to gluten and this has proved to be true. Fortunately my reaction is not debilitating but I now know within a few hours if I've eaten gluten.

Jill121 profile image
Jill121

I also have coeilacs disease, but also got very tierd and still in pain, it turns out after lots of dr visits and test, that i have fibromyalgia as well which explains fatigue, fog head, pain all over, maybe you should get your gp to look into this Good Luck xx

weee profile image
weee

Yes, I am much more sensitive now than when initially diagnosed. In fact I suspect I went undiagnosed for years and my- then mild- symptoms were put down to other things.. (IBS etc)

NinaG profile image
NinaG

Thank you all so much It is so nice to have such a great support network. Thanks again.

You may also like...

Could this be a reaction to gluten?

negative for coeliac in 2009, but was still advised by an endocrinologist to be gluten free. I...

New to life gluten free

I’m self diagnosed at present but reaction to any gluten is very clear. I bought the river cottage...

New pill that fully protects against the effects of gluten!

interesting to me even though I'd have massive reservations about consuming gluten again, But if...

Don't always blame it on Gluten: Does anyone have a soya lecithin allergy / reaction?

GF) and peanuts. Have any of you had adverse reactions - blamed it on gluten - only to look...

New here- dark gluten free choccy.

and blacks that does not say may be cross contamnated with gluten etc, also no soya. I am not...