Hi Just listening to a podcast and a specialist on gluten free issues and they are suggesting taking Lglutamine as a supplement as well as giving up all grains ( don't look forward to this aspect).
It is available on Amazon at a reasonable price but there are different ones and no instructions on how much to take.
thanks for any help in advance
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tmoxon
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Hi tomoxon, there was a really interesting and informative blog on L Glutamine on here a couple of years ago, please see:
Thank you Jerry, you are always so helpful. I should have thought to search before posting.
Anyway I think after looking at the information on the links that if i do decide to try it, a visit to the GP may be in order to check its not going to cause any issues for me.
If possible I would go for naturally fermented foods, rather than a supplement. It's a question of finding what your body can cope with. I am ok with live yoghurt but can't cope with the fermented vegetables I have tried so far. I should probably try to make my own.
I tend to use the bone broth as a base for soup, so I add something tasty to it. I'm not too keen on it on its own! Hope you can find something that works for you.
There have been a few discussions on probiotics on here.
I have taken L-Glutamine purely as an amino acid for muscle function. For the gut you have to take quite a high dose 1-6 caps daily (mine are 500mg by Quest). Do they work for "leaky gut"? Well I still see tomato skins and nuts in my faeces!!!!! (Yeah, gross but sometimes I have to do stool samples!)
Hi Jacks thank you for your reply, not sure what you mean, would you see tomato skins etc if you had a leaky gut or if you didnt. Sorry to elaborate on the subject but at the moment i am just guessing this is why i still have DH etc as its now been 3 years since GF diet and 3 months since giving up dairy. This last week i have just resigned myself to taking the Dapsone rather than being miserable with it as i don't need to medicate every day and haven't had the headaches which is my other symptom
Having talked to a family member about your query, the suggestion was to perhaps try a meat based soup, rather than the bone broth. Traditional chicken soup might be a good one.
Tomato skins are an insoluble fibre, so it wouldn't be too unusual to see them in your stools and would not necessarily be a sign of leaky gut.
HI Penel thank you for the update, no havent tried paleo yet. I have 3 paleo library books reserved at our library I was going to look at those first. I am not looking forward to it, as I am finding it difficult to do without dairy and don't relish the prospect of giving up more foods i enjoy.
Having said that I have started to feel a bit better since i posted this question, just wondering whether I have reached a point that i thought i should have when first diagnosed in March 2011, as unlike a lot of people I have felt worse since going GF
It would be nice to think that putting up with the Paleo diet for a few months might heal me completely and then the rash would go. Thank you for being so helpful
3 years is a long time to still have DH. It took a long time to clear up - (I've written this somewhere) mainly, cut down on halides - iodines, fish, drinking chlorinated water, and sulphides/fluorides. You can bring the salmon back into your diet when the itching gets under control.
Hi, I bought some. I took one teaspoon and had a terrible headache, muscle aches, just felt awful. I have always suspected I am intolerant to mono sodium glutamate and this proved it.
Hi Jessiepup thank you for the information, i didnt know this. I havent bought any as yet so will try to get a small amount to try if i do rather than waste money
Hello tomoxon....I am a few days late responding to your post. I did want to ask you if you have tried to do a detox? I am a certified holistic health coach andc I have RA myself. It has been a LONG road leading to where I am now. Before you begin taking LGlutamine, you need to clean out the gut in order to get the full benifit. I would love to talk more with you about the BENEFIT of changes we can make in our body using food and making changes.
there are pseudo grains (they are really seeds) that will stop your deprivation cravings, such as amaranth, quinoa and MILLET. The reason I capitalize Millet is that the texture is satisfying as a rice substitute, or even as a cream of wheat substitute, which depending on the amount of water you add to cook it can be a range of creaminess. You can even make flour and add flax to make pancakes or flatbread. Gluten free is not the end of the world, but the beginning of a love story with your own body. I will ask the universe to help you research and find more solutions to your lifestyle changes. Bless you
Hi Ramonalisa1 thank you for your suggestions, I have found (after being GF for the last 4 years ) that giving up dairy completely has made a big difference to the way i feel, I rarely have the DH rash now and my headaches have stopped.
A couple of months ago I was getting regular terrible headaches and was prescribed a medication that i would have to be on all of the time to prevent them. I decided then I would rather cut out foods which I thought were causing the headaches such as chocolate etc than be on the tablets for the rest of my life and touch wood it appears to have worked as i feel so much better now.
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