How was your experience of being diag... - Glioblastoma Support

Glioblastoma Support

646 members206 posts

How was your experience of being diagnosed with a brain tumour?

Shannon_TBTC profile image
Shannon_TBTCPartner
2 Replies

'When I first experienced symptoms of my own I had many types of tests, scans and treatments but my tumour was able to stay hidden. In the seven years that followed however its side effects gradually increased and they became much more visible and more serious as well - not knowing what this condition was for such a long time therefore made me feel extremely isolated too. When my diagnosis eventually came I received an amazing amount of care, support and understanding.

When being told we have a brain tumour, all of this is so very important for our health and wellbeing. I am so very passionate and determined to help brain tumours become much more represented in national surveys so as to improve the level of general awareness towards them, to have their symptoms be more easily recognisable and to help others affected by a brain tumour receive much more support too. By completing the surveys and helping the Brain Tumour Charity, we can make a really important difference for us now and for the wider world in future.’- Nicola Clark

Take part in our dedicated diagnosis survey here today- thebraintumourcharity.org/....

Written by
Shannon_TBTC profile image
Shannon_TBTC
Partner
To view profiles and participate in discussions please or .
2 Replies
Shannon_TBTC profile image
Shannon_TBTCPartner

thebraintumourcharity.org/l...

ShannonOxf profile image
ShannonOxf

I've filled in this form already, but it breaks my heart that we didn't see this coming.

Not what you're looking for?

You may also like...

Five Common Supplements That Have Shown Benefit In Glioblastoma Studies

Hello, my name is Art. I joined this forum recently to share information about five supplements...

recently had brain surgery to remove a glioblasta tumour. Start radiotherapy and chemo on 1st august. First serious illness i have ever had

alternative supplements and diet to help me cope with radiotherapy and xhemo

Glioblastoma brain tumor

Hi there, I had my grade 4 Glioblastoma tumor removed about 6 weeks ago, in the beginning of...

Posting this information in case it is useful for anyone else

As well as my NHS treatment, I recently had a private appointment with a Dr specialising in the...

Husbands radiotherapy/chemotherapy

Hi, please can you tell me your experience after having the mould made. My husband has his first...