Update on pressures : Hi just to let everyone... - Glaucoma UK

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Update on pressures

callie77 profile image
27 Replies

Hi just to let everyone know how I got on at hospital review.

Good and bad news really, pressures down 1 point in one eye and down 6 in the other. They are now 21 and 19. Was really hoping laser and drops would have worked they're magic and brought them down lower. But on the other hand they haven't gone up! So basically got to see consultant in6 weeks time and see what happens from there.

Thank you all for being there for me and helping me through another appointment. There is nothing easy about this disease.

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callie77 profile image
callie77
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27 Replies
Spanieldoglover profile image
Spanieldoglover

Hi Callie, you’re right there is nothing easy about this, especially when going for appointments and fearing the worst. But at least your eye pressures are going the right way, even if slowly and they are monitoring you closely which is good. I’m waiting to go back on the 14th after having SLT last week to see if my pressures are down. Not on any drops at present so really hoping they have.

I hope your pressures keep going down 🤞

callie77 profile image
callie77 in reply toSpanieldoglover

thanks for your reply spanieldoglover. I hope you get good results on the 14th. I will keep my fingers crossed for you. I have had laser twice now and expected my pressures to be lower. so disappointed.

Spanieldoglover profile image
Spanieldoglover in reply tocallie77

Thank you, I will be thinking of you too and hoping for better results for you next time x

I know you wanted lower pressure than this Callie but they have gone down,although not as quickly as you would like. As you say they haven't gone up so it's a small positive. It is good that they are monitoring you so well as Spanieldoglover said. It definitely isn't easy but we are all here for each other which does help.

Fingers crossed they are down further next time x

callie77 profile image
callie77 in reply to

Thanks WitchieIt really helps to know there are people supporting me.

Im going to try and forget about it for a few weeks now if I can.

I know you have your own worrying times ahead and I will be thinking of you.

Here's hoping we all have better times to come x ❤to Lu.

in reply tocallie77

Yes definitely try and put it away to the back of your mind until the next appointment. I know it's difficult but it's definitely better for your mental health. I'm just thinking about putting my Christmas tree.up on Dec 1 and decorating the house as I must admit I don't feel very Christmassy at all yet.

Yes a 2022 with no eye dramas would be lovely for us all. X

callie77 profile image
callie77 in reply to

Hi WitchieI am trying to distract myself every day so might put my Christmas decorations up earlier than I usually do. Makes me feel better.

I hope you're feeling better now after your cold.

Thanks for your good wishes it really does make me feel like I'm not alone in this nightmare x

in reply tocallie77

Christmas decorations are nice and cheery so definitely a good idea to put them up early . There are loads of houses with their trees up in my village. My cold is pretty much gone but my other half isn't well with it now and he is one horrible patient 🤧.

You definitely aren't alone x

Redshoes15 profile image
Redshoes15

Hi Callie, I’m glad your pressures have at least gone in the right direction. What a worry it all is, especially every time we go for our dreaded appointments, I have my next one on 17th December and am really dreading it as I know I’m going to need a trab on the other eye. The drops weren’t keeping the pressure down enough last time I went but I can’t face going through the op again right now. Here we go again! Good luck with your pressures - I hope they stay nice and stable and you are right not to worry too much in the meantime. xx

callie77 profile image
callie77 in reply toRedshoes15

Hi Redshoes I will be thinking of you on the 17th, it's the last thing you want before Christmas.I don't know how I would cope with having a trab done but you have been sooo brave in having one eye done already. You really give me faith that if I needed to have it done I could go through with it.

Take care x

floki7 profile image
floki7

Best wishes for good news in 6 weeks, everything crossed for you.

callie77 profile image
callie77 in reply tofloki7

Thank you floki7 I will probably be a nervous wreck again in 6 weeks!! X

Engima profile image
Engima

Hi Callie, as other people on this site have said, it is a positive sign that the pressures are going down. Hope they continue to do so, or at the very last stay stable. Wishing you all the best for your next appointment.

callie77 profile image
callie77 in reply toEngima

Thank you Engima yes I must look at it as glass half full instead of half empty. Thank you for your good wishes, I couldn't go through with all the appointments without everybody's help on here x

Sufitzy profile image
Sufitzy

Great news . And also good they are keeping a close watch on you . Xx

callie77 profile image
callie77 in reply toSufitzy

Thank you. Yes it seems they are keeping a check on me x

valfrance profile image
valfrance

Hi Callie, i think that is a good drop in pressure. I had slt and it fluctuates up and down by 2 or 3 points. It is now 8 months since my slt, and i take monoprost in the night also. It took a while at least 6 months to get it down to a good pressure of 17, 18... yours is only 4 weeks. So don't feel depressed about this. takecare valfrance

callie77 profile image
callie77 in reply tovalfrance

Hi Valfrance I had slt before and it didn't make much difference the first time but I didn't know that it might come down more with time. That gives me hope thank you x

Lovemy2woofs profile image
Lovemy2woofs

Glad they have dropped and you are being closely monitored , especially when all your hear these days is such long delays with anything to do with health. Try not to get too disheartened , things are going in the right direction and wishing you continued success x

BonnieMagic profile image
BonnieMagic

It is good news though I know only too well how you feel. I had a second bilateral SLT a fortnight ago as my pressures were still 22/20. Have to wait till Dec 30 for my follow up. Somewhat surprisingly my optician found that my vision has improved - it’s a complex prescription and quite poor - bad news is the cost of yet more new specs! It’s always something isn’t it?

callie77 profile image
callie77 in reply toBonnieMagic

Hope it goes well for you on 30th it gives everyone hope.Glad to hear your vision actually improved! It's a strange disease

Thank you for your reply it really helps me hearing from other people x

Beecalmed profile image
Beecalmed

It’s a real rollercoaster ride, isn’t it? I’m just waiting for the results of my SLT. I have an actual face to face with my consultant (or a consultant) in a couple of weeks time which is ridiculously exciting as I haven’t had one of those for 2 yrs, just seeing student doctors and trainee opthamologists in virtual clinics. I’m trying to not get my hopes up too high but my 15/16 IOPs prior to the SLT had dropped to 12/12 after the first half of my SLT so hoping they’ll stick at 12. I don’t have a great record of IOPs being stable on eyedrops and even when they are on target IOP my glaucoma still resolutely progresses in my right eye. 😤

callie77 profile image
callie77 in reply toBeecalmed

Your right Beecalmed it is a rollercoaster! I hope you have good news. Like you said it's hard to even see a consultant. I usually have a long list of questions ready for him!!xx

Wales99 profile image
Wales99

Ah I know how you feel, we’re all a little bit obsessed with eye pressure but as others have said, at least they haven’t gone up 😊. I’m due to go back in a couple of weeks, it’s been six months since my Trab & I haven’t seen my consultant since July. I’m terrified my pressure’s gone up.

callie77 profile image
callie77 in reply toWales99

That's a long time since seeing the consultant and I know we all dread the pressure test.Please let me know how you get on.

Thank you for helping me, take care x

Wales99 profile image
Wales99 in reply tocallie77

I know it is a long time & I’m lucky enough to be private. My consultant is a professor of glaucoma though & specialises in MIGS - minimally invasive Glaucoma surgery so I think he’s all for leaving it alone to see what it does. I have to trust that he knows what he’s doing. We can only hope. I try to think to myself that no amount of worrying on my part will change anything. - it is what it is and I can do nothing about it apart from follow what I have been told to do by the professionals. I hope things continue to improve for you & we’re all here for each other. Hang in there & take care 😊.

callie77 profile image
callie77 in reply toWales99

Thank you Wales I'm trying to be more positive. Talking on here helps.You seem to have a top consultant looking after you. We all just have to do as they say. Take care x

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