Foggy's "Invisible Illness" Support
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Cfs

I'm a 37 yr old and was an active woman. I have been suffering with tiredness/exhaustion on and off for the last 6-10mths. Also had numbness in my left side of my body. Plus my muscles ache. Was rushed to hospital had mri and lumber puncture. Mari showed 2 leasions which the hospital called non specific. Now my right side is effectively the same as my left. I also have pins and needles. Went to see my gp who when I asked about m.e said we cannot rule out CFS. The slightest thing cause me to be drained.

So I don't know where to go now as what does a statement like that mean 'cannot rule it out'

Sorry for the vageness. Don't know which way to turn 😢😢😢😢

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I replied to this already and my reply isn't here now!

I said to ask your doctor to refer you to an ME specialist.

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Dr is now doing further blood tests at the moment as he has said it's too early to say if it is Cfs. He at said I was depressed to which my reply was I'm feel sick and tired of being sick and tired and yes I feel low but not depressed. He has now given me amiptripalline for my spasms x

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There aren't any blood tests for ME/CFS! Years ago I suggested to a Doctor and a nurse that I might have ME and they both said 'No because your test results don't show it', well they won't because they can't!

A doctor tried to get me on Prozac, saying that my fatigue was due to depression but I refused to take them, telling him that I was not depressed.

It's never too early to say if it's CFS if you're referred to an ME specialist. I'd insist on it.

Some questions: Do you have brain fog, a feeling as though your brain is wrapped in heavy, wet cotton wool? Do you feel worse after physical exertion? Do you feel worse after a nap in the day time but you have to have the nap?

Saying that the numbness is a concern and there are other conditions similar to ME. I really think you need to push for a proper diagnosis so tell your doctor that there aren't any tests for ME and you need to see a specialist. That's what I'd do, well it's what I did!

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My dr wants to rule out over factors such as thiroid problems.

In answers to your question yes to all of them. Unfortunately in Wales we do not have ME specialist . So it my go who will say if it is or isn't. On Wednesday I went to the dr, had coffee with a friend and returned home. My muscles were aching and I did nothing the following day. Totally drained.

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I know that feeling very well; it's referred to as post exercise malaise and it's one of the symptoms of ME that should be considered in diagnosis.

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If your GP wants to rule out the Thyroid - then do ensure the correct testing is done. The TSH - FT4 - FT3 and the thyroid anti-bodies - Anti-TPO and Anti-Tg. Too often they just do the TSH test - which is a Pituitary hormone and tells you very little about what is happening with the Thyroid. I have been on the Thyroid UK Forum for 4 years so have learned a great deal from others who know more than me :-) You can click onto my name and read my Profile - and journey to wellness.

Your symptoms sound very much like LOW B12 - and yes there can be lesions. Low B12 is very common with LOW thyroid. Also have the Ferritin - folate - Iron - VitD tested in addition to the B12. The B12 needs to be around 1000 to prevent cognitive decline. B12 Deficiency is a neurological condition if left undiagnosed and under treated. See link below ....

b12deficiency.info/signs-an...

Check out the videos too - under the heading Films. Everything you need to know about B12. Also see the link below to check out Thyroid information ....

thyroiduk.org

When the T3 is low - which is the ACTIVE thyroid hormone - then you will have low energy. Every cell in your body - trillions and trillions of them have receptors for T3 - so when the T3 is low there is not enough to go around. Docs fail to test this vital hormone - possibly due to the expense.

I am also on the Perncious Anaemia Society website and it is so very sad to read on a daily basis how little GP's know about B12 Deficiency and Thyroid. It is a scandal.

Always obtain copies of all your blood tests - it is your legal right - so you can monitor your own health and post here with the results and ranges for advice. Happy to help :-)

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