Yesterday was a bad day .: Yesterday... - Functional Neurol...

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Yesterday was a bad day .

Littlecook profile image
7 Replies

Yesterday was a bad day very close to losing it very close to tears, I was struggling to hold things together, to day is basically the same I just want my life back , I've had Net cancer in the past but this seems to be over taking my life .

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Littlecook profile image
Littlecook
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7 Replies
tabey profile image
tabey

Hang in there its a terrible thing to have and with lack of surport and people looking at you as if your fresh from the nut house does not help but hang in thereTry not to put to much pressure on yourself and rest when you can

I found by breaking my day down bit by bit and if i cannot do a bit i do it tomorow or when i can

We can not fight FND head on but does not meen we let it win

Just enjoy what you can try not to overthink and never look back at what you could do but look forward on things that you can do but on your terms

Sorry if this waffle but i been there many times cried alot too

Always vent away when needed

Tabe

Littlecook profile image
Littlecook in reply totabey

Hi Tabey Thank you for your support I'm like everyone we all used to do things before all this issues i could go to work and enjoyed my job talking to the residents and cleaning , but now I have permanently dizziness and tablets don't seem to work I now know I can't do my job anymore for safety reasons.

I appreciate all the support I get from everyone, I just wish I could find a support group local to my home address in Wolverhampton.

tabey profile image
tabey in reply toLittlecook

Try contacting 'Mind' or FndHope they may be able to help you find a group local to you😃Always feel free to message me im close to gravesend in kent

Lady4 profile image
Lady4 in reply toLittlecook

For dizziness you could try and weighted vest or neck wrap to help ground you. Let your body know where it is in space.

Shimmyaway profile image
Shimmyaway in reply toLittlecook

I just hope the folk doing your work assessment for Universal Credit realise that with the best will in the world, you just can't work with all the symptoms you have. There is no support group in Birmingham either .. but admittedly, getting FND sufferers together would be a tough task. We all have barriers to going places... esp alone. It's important to find something purposeful you can enjoy doing even if it's not what you would have previously chosen. Chin up!

Lady4 profile image
Lady4 in reply totabey

Totally agree Tabe, celebrate the little wins and it will get better.

GeeBee11 profile image
GeeBee11

I understand your condition. It sometimes gets so bad for me that I have to take each hour at a time to keep going. Distraction is key but sometimes seems impossible when the symptoms are so overwhelming. Just stay as strong as you can in the moment. You are not alone.

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