Over the last few days I have never felt so bad all of a sudden my speech and balance went completely every time I got up out of a chair walking the dog what should take me 20 minutes took me 1.30 all over the place that bad yesterday a police car stopped to make sure I was ok
My family want me to go to hospital but I won’t as I will be stuck in a@e for hours to get told it is FND again I can’t face that again it is so wrong that once you get labelled with that I am afraid you are stuck with it
Yesterday was bad for me too. I couldnt even walk with my walker. Could not lift my grilled cheese sandwich or pretzels.... very bad motor skills. I couldnt comprehend others speach. Then i ate dinner and was up most of the night hoping it would stay down. Sweating it out. Good luck to everyone this new year... from my recliner
Yes I have been diagnosed with FND I experience vertigo and have also got PPPD it sounds like your symptoms,. You can look it up on line. I have a brilliant Physiotherapist who has completed a course on this just before Christmas, and is continuing my treatment shortly.
Hi Bluegerand and Happy New Year 
I am still very wary about the PPPD label and am aware that it is being over diagnosed and diagnosed in people who do not meet the current diagnostic criteria for it. There are many, many causes of 'dizziness' and far too many other causes are being missed due to the over diagnosis of PPPD. I'd be interested to know what your physio thinks about the citation in the dx criteria for PPPD about 'phrenology and mental derangement' from 1831 (it's over 400 pages long and almost entirely incomprehensible). I was told it referred to the 'function vs structure debate' and that 'they could have used a better one'. Hmm, I wonder why they didn't and also why that debate isn't over because we've known for ages that people don't need to have structural damage (or gross lesions) to get migraine or many other neurological/audiovestibular conditions (sopite syndrome, sea sickness, depression, MdDS, tinnitus etc etc). Using poor quality citations hardly inspires confidence in this 'human construct' but I really hope your physio can help you. If they can also get Prof Stone to update his info about PPPD to include the Cochrane review of medications, that would help a lot too.
Maybe it is FND but maybe it’s not … Go to A&E.
As you are in the West Midlands, shouldn't your GP or neurologist be referring you to the neuro psychiatric services at the Barberry Mental Health Trust in B'hm?... that is assuming you want to follow,,albeit reluctantly, the FND trail. Below are some of its advertised merits...and you would get at least another (free) look at your condition.
The Neuropsychiatry service is a specialist service with an international reputation aiming to offer cutting-edge care and management for the full range of Neuropsychiatric disorders. It is at the forefront of international research and the teaching of Neuropsychiatry.
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It may be best to rule out other issues if it continues. Yes, your symptoms may be FND. If the issue is FND, try to calm down the nervious system to stop the sysptoms.
Is it possible you could have a brain injury? I have been diagnosed with one that caused my FND. It has affected my speech and motor skills as well. Sometime I speak like I am drunk but I am 100% sober.
Snap my speech went last Thursday and it sounded like I was drunk it keeps going like that according to the scans they are ok it only showed prominent cisterna magna which has got a lot bigger since my scan in 2021 personally I want another one and when they did the rubber hammer test on my knee my right leg just moved a bit but my left leg shot up like anything the consultant said wow not seen that before and no follow up with that but why did it do that 🙈
It could be neurological. FND simply put is the software in your brain isn’t telling your body what to do. Not sure if a SPECT scan would help you? Have you had your eyes tested as well from a neuro-optometrist perspective? Neurolens (multiple prism glasses) and eye therapy may help. May go down the brain injury path as that can cause FND. Maybe FND isn’t the root to your injury?
Rather than going to hospital see if your Dr can refer you to the programme at Rosa Burden, Southmead Hospital, Bristol, its an intense in-patient multi-disciplinary course, their website is below:nbt.nhs.uk/our-services/a-z...
They have specialists in FND, so if its not, they would tell you that too.
So confused with this diagnosis
Fnd with demyelination spots on brain
Its been a long time since this all started! 
FND in Australia is ridiculous. 
I KNOW I AM GOING TO GET EVERYONE ANGRY
