trying to get back on my feet - Functional Neurol...

Functional Neurological Disorder - FND Hope

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trying to get back on my feet

KingkittyS profile image
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Not to long ago I went to a mental hospital because I wanted to finish life. I felt this way because I just kept on getting sick physically. I am back at home now but still feel negative from time to time. I want advice how can I get back on my feet. I am trying to implement activities in my life but it still doesn’t feel the same. My communication skills are not the best at this point. I talked to my friend but I found it awkward. I just don’t feel like myself. I really want get back to when things were normal.

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KingkittyS profile image
KingkittyS
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Misstea profile image
Misstea

Try a new hobby you find interesting. I'm trying to learn watercolor in part because I like looking at various colors. I also crochet a bit and make my own soap, when I can read. As for speech, I have been using Speech Assistant AAC on Android. It's helpful since I'm not going to sleep at the best times and my speech is trash when tired. I'm not sure if it is available for Apple products though.

Leesaloo profile image
Leesaloo

hi, I remember being in your situation, no answers, constant pain in different areas, seizures caused through noise, pain, unable to walk, 2 years I lived that life and wanted to end my life off and on. I eventually got answers from the right person and was offered rehabilitation in London for FND. Four years on from the start of symptoms I did my rehabilitation for 1 month and came out a different person full of hope for my future that I didn’t have. It’s been 9 years now and lots didn’t improve as much as I’d hoped. I have to be really careful I don’t overdo things mentally and physically as my speech starts slurring and I could have more non epileptic seizures. I decided to concentrate on one thing and that is my dog, walking, playing games, training, with sporadic housework in between. It’s not the life I wanted but without my dog I would definitely still be struggling to go on. I hope you too can find something worth carrying on for, it’s a lonely life living with FND with lack of understanding from professionals and family. I wish you all the best for the future. 🤗🤗🤗🤗

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