misdiagnosed

[Bulldog07]

Hi as anybody on here been misdiagnosed FND n then gone on to have Lymphoma , thanks

[Hidden]

I was misdiagnosed, but not for that...

Mine is an anomaly. Not from the diagnosis isn't but how it is manifesting is.

[Fnd_kiwi in reply to Hidden]

id love to hear , im going through that too .

[Misstea]

To be honest, I'm currently going through hoops and ladders just to get evaluated for ASD. I could go ahead and bring up ADD but I rarely hear about it and I want to bring myself up to speed as to why ADD seemingly disappeared.

[Hidden]

Strangely enough I was scanned for cancer last year(PAT and CT) as part of my diagnosis (autoimmune plus FND). To be fair my diagnosis is still not fully conclusive.However, I now have an urgent referral for an ultrasound as a lump suddenly appeared in my arm (current mobility issues are leg related). An egg sized painless lump appeared in my upper arm that has caused muscle aches and mobility issues in the arm. I'm hoping it's nothing sinister but suspected sarcoma on referral. I have another 10 days to wait until the US and its continuing to grow. This may not even be related to my leg issues but it is occupying my thoughts. 😩

[Bulldog07 in reply to Hidden]

thanks for reply , let us know how u get on , I’m waiting on blood tests 👍

[Hidden in reply to Bulldog07]

Thanks Bulldog07. I had suspected lymphoma last year due to bloods, but it wasn't found on the scans. Let us know how you get on. I know exactly how you feel right now. X

[Bulldog07 in reply to Hidden]

Thankyou , I will let u know results 👍

[Bren10]

I was diagnosed with FND in 2017..... stroke-like symptoms, right-sided weakness, and extreme fatigue, along with other symptoms which, looking back, would be auto-immune related. Dismissed by neurologist after Hoover's test and told to go home and read the FNDHope website, my having never heard of FND. Here I am six years later having just been diagnosed with Sjogren's Syndrome, an auto-immune disease which often takes years to confirm....!! Sjogren's Syndrome can sometimes lead to Non-Hodgkins Lymphoma so I'm now under the care of various 'ology's' and would love to meet up with that neurologist and tell him in no uncertain terms I wasn't 'malingering' after all and anxiety wasn't the sole cause. Hopefully the medical profession is now becoming more aware..... but it can be a tough road when you've had yet another bad fall and the hospital staff see 'FND' on your records and leave you in extreme pain for three hours in a cubicle with all the noise and bright lights and no call bell or water and no checks because they assume you are feigning. But stay strong.... I have a card stuck on the kitchen wall saying "...keep positive, keep active, and keep a sense of humour..." and it's stood me in good stead over these last few years. Thinking of you all and keep battling....

[Charts in reply to Bren10]

Started having seizures, weird movements and they just said fnd. eeg was negative so they were stuck on fnd (it was actually an epileptic nurse who planted the seed in their head). At the time these things were triggered more when upright and I kept empathising that but no one listened. Following this I got diagnosed with pots syndrome and most recently antiphospholipid syndrome (which can cause movements disorders etc). Antiphospholipid syndrome is an autoimmune disease and i truly believe now it was never fnd.

[Bulldog07 in reply to Charts]

Thanks for reply , yes I do believe a lot of people get put under FND , but the more u live day to day with symptoms u realise it might be wrong diagnoses , so frustrating n we could be getting worse without right treatment for what it really is , just not right 😣

[Charts in reply to Bulldog07]

Its unfortunate you got to fight and try and figure it out yourself in the end as no doctors are willing to do that.

[Bulldog07]

Thankyou for your reply 👍

[Jenradmo]

what is this because I currently have a lump in my neck which has been growing. I’ve been booked in for a scan and biopsy but they’re saying it looks like a lymph node.