Waiting for a confirmed diagnosis

[Spalfie]

Hi, first time posting.

I started having issues just over a year ago, it started with my right eye blinking rapidly for about 10 mins then I couldn't move my whole right side, face dropped as well, for about 7 hours speech was also serverly impaired during this time. After this my right side started coming back just felt rather fatigued for a few days. I get some days where just my arm or leg go. The doctors done various tests to rule out stroke, TIA etc which all came back clear.

After a couple of weeks I started to get constant pain down that side, which is always there some days are better than others. Am on an array of pain meds to try and help. I also get quite bad right sided swelling, which traps my sciatic nerve. The swelling is always there but like the other symptoms some days are better than others. I also get a lot of shooting pains up and down my right side that feel like someone is shoving a red hot poker down my nerves.

I find that a lot of driving can make my symptoms worse. Does anyone else have this?

[Van604]

Hi. Yes, I have something similar. Left side weakness/pain that sometimes becomes total paralysis, and then I'm hospitalized because they think I'm having a stroke. Testing all clear. Takes anything from a couple of hours to several days to be able to move again. I get sciatica from problems with my ribs, from a fall 10 years ago, according to my physio. I also had a discectomy on that side 4 years ago, which is when my symptoms got worse (but it did fix that problem). Any kind of sustained holding of posture (watching TV, working on a computer, etc) makes my symptoms worse. I'm also most stiff/in pain when I wake up. I often feel like I have to move around. My fascia is very lumpy and constricted and I think that has something to do with it. Yoga/dance/massage/manipulation seem to help. I have a family history of strokes so I'm not convinced that I'm not having them - maybe they are too small/transient for their machines to pick up. I was on a neuro ward for 4 weeks and my symptoms were similar to people who had had strokes. This is a weird thing but I'm hopeful they'll figure it out one day - at least they're taking it more seriously now and not just assuming we're "converting emotions" or faking it (although I've had to put up with a lot of that too).