Wrong diagnosis: Last year when my... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Wrong diagnosis

Ottaw profile image
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Last year when my symptoms started with numbness and difficulty walking and sensetivity to cold and humidity and many more symptoms the neurologist said it's migraine, then 2 months ago he said I need to see a psychiatrist, finally I was able to see another neurologist and right away after doing nerve conductor test and checking my balance he said it's FND. Through this time I had chatted with MS clinic and I was told even if MRI of brain doesn't show no lesion doesn't mean anything and blood work the only test was done to see if I have any kind of RH and now for some reason I think I been misdiagnosed.

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Ottaw
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210272 profile image
210272

Ottaw - thank you for your post and I hope you can challenge the FND dx. Yet again your post demonstrates the need for a gold standard of what can and can't be used to make a diagnosis of FND/Conversion Disorder/Core psychiatric disorder. Especially since a lot of people are getting this diagnosis without any testing at all and purely on the basis of confirmation bias/inbuilt diagnostic inflation. IE '2 out of every 3 patients we see have FND and I think you do too.' Patients are told it's 'a breakthrough in neurology' and then promptly get discharged from neurology and feel conned.

There are many neurological conditions that don't show up on MRI scans, as Hon Prof Stone is well aware, since he mentions it in his 'functional symptoms in neurology, the bare essentials' paper. So I'd be inclined to question the nerve conductor test as proof of FND too. While some neurologists have a good understanding of balance or motion sensation conditions, many don't - you need a neuro-otology assessment for that and/or a consultation with an audiologist and/or neural-ophthalmologist :)

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