Recently diagnosed.

[Littleme45]

Hi Everybody .

I was diagnosed just before Christmas and now finding that I can't find any local help groups in my area . I live in Norfolk . Any suggestions would be so helpful . Kind of feel like I'm having to do this alone.

[Bailey09]

Hi, you could go to your gp and ask for a referral for physio and counselling

Take Care x

[Hidden]

Hi Littleme45,

I’m sorry you are feeling alone with this, I can see how it is isolating in so many ways.

How are you doing this week?

Orchard18 😊

[92Immi]

I think support groups for fnd are limited because knowledge and research on it are limited currently. Have you got a GP and neurologist who are supportive. I’ve had nearly six months off work since a head injury triggered it, got told I had fnd and fibromyalgia. That was it I did get referred to the pain clinic who are supposed to be sending me for pain psychotherapy. Apart from that it’s pretty much just been on my own, maybe because my mobility has improved somewhat and I’m not as badly effected as others. Maybe because I got the impression there is basically nothing they can do it’s just learning your own triggers and coping mechanisms. It’s one of those weird illnesses that are hugely debilitating and you have to just figure it out on your own. Thank goodness for sites like this. Have you looked at mindfulness and cbt ?? Keep talking to people on here for many of us it’s the only place to get any support . Xxxx