No help

[DonandLisa]

FND is a diagnosis with no out come no help no real support it is ruining us good luck to everyone else

[Cmb3210]

I sent ua private message days ago..food u get it

[Cmb3210]

Did u get it..not food ..damn auto correct

[Cmb3210]

To see private message u need to click the chat talk bubble thing at the top..third icon from the left at top of page

[Hidden]

I don't know where you live but there is an FND clinic at Stanford, Center for NEuroskills is amazing - they're in TX and CA, Mayo clinic has clinics and you can check out any local large hospitals near you and go to a movement disorder clinic. It took me over a year to find a Dr who diagnosed me. Sadly we're really on a path with just others like us and google. But join the FND group on FB and Love Your Brain has a lot of resources with free info. Hope this helps. You're going to be ok, it's hard and trying but at least you found us!

[DonandLisa in reply to Hidden]

Thank you we are in Australia there Is a doctor in Brisbane apparently

[Jazymay in reply to DonandLisa]

Which state are you in? I am in SA.

[tatiyana]

i know how you feel, being referred to a neurologist for the 5th time, apparently i am always out of the area??? im fed up and wanna quit life as mine is not worth lving, fed up with fake people getting everything yet 10 years later im still struggling....no support or anything...i feel your pain xxxx

[Jazymay in reply to tatiyana]

I am so sorry you feel so bad. It is awful to deal with this. It is frustrating, demoralizing and isolating. And if you have to deal with pain too, that makes things feel so much worse.

I guess I have found that being on here really helps. I have no follow up. Thus is it. Just my normal psych appointments which i was already having.

I am learning how to value really little things now. My dog and cat make me happy. I concentrate on trying to keep my dog healthy with exercise when I can and I get her raw bones. I try to keep my garden green ( living in South Aus in summer!), by remembering to water it each day. I try to do a chore each day, don't always manage it. And I am learning to let things go that are not important.

If I am exhausted all day, i am learning to accept it and just watch Netflix. It's ok. It doesn't matter. I don't affect anyone else.

But I am lucky in that regard because I live alone.

I hope some of this is helpful, or at least supportive. But it's a massive learning curve!

[DonandLisa in reply to Jazymay]

Thank you x