Letter from Professor Edwards

[Bgpgrand]

Many years back i saw Dr Edwards as he was then, about my condition. He informed me it was FND and that they had a plan to get me back to fulll health, or at least as close as they could. The first step of that plan was to get my overwhelming pain under control. Ever since i have been under the Pain Clinic. The appointments have become few and far between. I am meant to have a ketamine infusion every 2-3 months, however I haven’t had one in over a year. Not that they worked for very long, or all that well.

Last week i got a letter from Professor Edwards, saying that due to the overwhelming pain that i am still in 24/7, there is nothing more he or his team can do to help me. This has really got me down, it feels that i will be like this for life. Not only that but now the specialists have given up on me too.

I’m now really down, and really have no idea what i can do next to try and help myself. Does anyone at all have any ideas what i can do, who i might be able to chat too that might be able to help me.

Thanks Guys

[Newsteps]

I dobt know where abputs you are but i highly recommend crainial therapy sessions they made a massive difference to me, it took a couple months going every week sometimes twice but it helped me alot. I know it's alternative therapy but sometimes it's good to look outside the 'medical box'. X

[cathys20]

Good Morning, And first may I say I am so sorry. Sometimes when medical personnel feel they can do no more, they simply do no more. I am sure it makes you feel alone and abandoned. But trust me you are not alone. You have a God that hears and answers and is there I promise. You have people on this board who genuinely understand and care. I pray you have others in your life that encourage you. The pain you speak of is relentless, I share in this pain. It is so hard to live with. I also have at this time constant vertigo and double vision, nausea that will not end. Diagnosed a short time ago with Sjogrens disease and again told nothing they can do. A primary Dr. bless her so compassionate that says its like I have MS but don't. Each day is a fight, but fight you must. Different medications may help they have over the years with me. They keep trying new combinations to find some relief. But praise the Lord they have not given up on me. I had a urologist ask me this week, so what is it you have, lol, that is the question isn't it, what do we have. I said I don't know, you have any guesses?? I just recently was in the hospital for 8 days, developed meningitis, it took another toll on my poor damaged brain. But I fight, need help for everything it seems but I fight. I won;t be beat, not by Dr.s or by this body, cause I am strong...The bible says I can do all things with Christ who gives me strength, and Christ is not a liar. God Bless you today, you truly are not alone.