First Wheelchair: Good Afternoon, Well... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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First Wheelchair

Kosh1689 profile image
17 Replies

Good Afternoon,

Well, I do not post very much since I am content reading post daily. I just turned 29 and started the process of using a wheelchair. I have a rental wheelchair now and it feels better than a walker. It feels better to be more mobile. I do not like having to use one but it is better than being stuck in one place and being more mobile. I cannot wait until I have a new walker that is customize for me. The wheelchair will help but how much will FND take from me?

Sincerely

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Kosh1689 profile image
Kosh1689
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17 Replies
ccherek0701 profile image
ccherek0701

Hi how many years did it take u to used a walker and wheelchair after being diagnosed with FND if u don't mind me asking because this is all new to me

Kosh1689 profile image
Kosh1689 in reply to ccherek0701

I used a cane for 9 years, then seven months with a walker, and now a manual wheelchair. The disorder symptoms can change very fast or remain the same for awhile.

ccherek0701 profile image
ccherek0701 in reply to Kosh1689

When did u get dx w FND

Kosh1689 profile image
Kosh1689 in reply to ccherek0701

I was diagnosed 6 years ago maybe. It took years to be diagnosed.

ccherek0701 profile image
ccherek0701

Do u get crushing attacks like your being crush I had to have a bladder machine put in me last dec.

Kosh1689 profile image
Kosh1689 in reply to ccherek0701

I do not know what you mean by crushing attacks, sorry.

ccherek0701 profile image
ccherek0701

What I mean is it feels like u have on a girdle really tight its from your neck down to your hips when I looked it up it came up as MS hugs

ccherek0701 profile image
ccherek0701

I was having problems sense I was 17 yrs.old they thought I had ms and it was getting worse and then I was dx with FND in 2016 with other medical problems

Kosh1689 profile image
Kosh1689 in reply to ccherek0701

ok

ccherek0701 profile image
ccherek0701

What meds do u take for this? and if u ever want to talk just message me ok my name is carol I'm 39 yrs.old

Kosh1689 profile image
Kosh1689 in reply to ccherek0701

Thank you!

Tewa profile image
Tewa

I went from a cane to a walker to a mobility power chair. It made my life so much better. Gave me freedom, independence and helped lift my spirits. Since this continues to progress and I cannot walk very far....my ability to go out on my alone would be seriously limited without the present power scooter.

Hope you find that you benefit from the wheelchair.

Kosh1689 profile image
Kosh1689 in reply to Tewa

My wife and I agree with you.

Tewa profile image
Tewa

I will you well and hope the wheelchair brings you benefits.

Tewa profile image
Tewa

I meant..."I wish you well."

Kazandlily profile image
Kazandlily

Hi. I just wanted to add my voice to reassure that it may not continue to progress. I have to use a wheelchair, and got to that point within a year of symptoms starting, but it has now stabilised. Now I feel so much better, and have more energy to live life generally, all thanks to using my wheelchair. I am fairly young, so it took a while to adjust, but now I sometimes forget I'm in it, and I'm so much happier as I don't feel ill and drained all the time, and I can do my job so much better!

Kosh1689 profile image
Kosh1689 in reply to Kazandlily

Great!

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