Hi guys. I'm just wondering if anyone else gets fasciculations and weakness that is progressive. Mine have started small and keep increasing to all areas of my body, they vary in intensity and often can be short bursts that move around or stay in one or two areas at a time. I actually feel then increase to complete shaking and other times have a choreographed dance.
Face, chin, jaw, behind ears, legs all, arms and hands, feet, abdomen, eyes, etc. Sometimes it feels like they are notting and cramping which can hurt. My body is moving all the time somewhere. Last night my tongue and head jerked around and my calf muscles felt so sore like they'd been hit hard and got really hard to walk.
I know everyone gets some degree of it, but wonder if anyone is getting the same as me and have you found anything to help. No supplements have helped. My throat cramps at times as well as other areas and it is not fun.
I'm still working but in a very active role, but wonder that 2017 might see me having to stop if progression remains to be so quick.
I cry and laugh randomly and I feel frustrated by my declining ability to do things let alone walk or try stairs.
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Angel73star
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Hi Angel73star I had to Google what fasciculations was but now I can say yes I experience very similar!
I'm still currently off work although I do hope to return next year fingers crossed.
I seem to get random twitches/jerk and like you said it's like they move around my body. Sometimes it's a shoulder or my head sort of nodding to the side... I've felt before (I've put it down to when I'm really tired due to overdoing it) that my whole body is restless and then something starts going then I control it then it's something else...it's so strange.
My calves are often the worst pain and that usually precedes a seizure.
I'm taking B vitamins and magnesium. I definitely feel like things have improved since I started these but the symptoms are still there I've just accepted them a bit more I guess. I have days where by the evening I find it SO difficult to get up the stairs I just go up and stay up!
My eye used to twitch a lot but that hasn't happened for ages now (touch wood).
Hopefully someone else has actual advice but wanted to reassure you you're not alone x
I just had to google fasciculations too. Interesting to see in Wikipedia that it lists magnesium deficiency as a cause (I think that's what 'Pathological Conditions' refers to).
If it's what I think it is, yes I've had that too. For many years I suffered from a severe magnesium deficiency that caused all kinds of muscle interferences. They often started with muscle fatigue, quickly followed by hand/arm shakes, and then the muscles just sort of melted down into a full on spasm or clamping action.
My doctor picked up on the magnesium deficiency, even though my blood tests were normal. He just kept on bugging me to keep increasing my dose ...until I got diarrhoea, he would say, then to back off just a tiny bit, as the diarrhoea is a signal that the body now has enough.
At that stage, I needed 5-8 huge tablets a day, just to stop the muscle fatigue, spasms, seizures cycle and to get rid of the muscle 'ropes' forming from the cramps that don't let go and were taking up to an hour to massage out.
Now I take between 3 and 8, quickly upping the dose as soon as I have a spasm or a seizure, because the increased muscle activity immediately increases my magnesium needs, almost exponentially.
There are days that I just can't swallow enough magnesium and my muscles are still irritable, moving of their own accord, or painful, so my doctor told me to take an Epsom Salts bath, as per the label on the box. The Epsom Salts is straight magnesium and is absorbed by the skin. Very relaxing when I need it the most lol!
I know a lot of people say they take magnesium, but I've only heard of one person who takes 6 or more tablets a day...and she doesn't have FND, just leg cramps at night.
I know you sent this message 2 years ago, but I have just seen it and needed to reply! Yes that definitely happened to me!! I am convinced that sertraline kick started myoclonus. I was on my second day of taking them and then started convulsing. I was terrified, always been in good health and never experienced anything like it. Huge convulsions like someone was punching me in the stomach. Like a fit, but I was awake. As the days progressed, the myoclonus worsened and would kick off if I was startled by light or sound. I still get them two years later, but not as severe. But I’m left with fibro and CFS.
Would love to know if there are any research groups about this.
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