Help for Carers with FND: Hi everyone... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Help for Carers with FND

LEEJUNFAN profile image
8 Replies

Hi everyone!

Is there a support site for Carers of loved ones with FND?

It would be nice to correlate with others as this is an isolating condition for both people involved and having contact would be very helpful especially for those who's families don't offer much help.

Best Wishes!

Tony & Kim

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LEEJUNFAN profile image
LEEJUNFAN
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8 Replies
Bluecat99 profile image
Bluecat99

I totally agree. I'm not aware of anything particularly for carers as such at the moment, but I think that the support groups that FND Dimensions are creating may include carers. For my family, it has been a total change in lifestyle, and my husband has ended up doing everything that I used to do, as well as working full time. It would be good for him to meet others in a similar situation.

LEEJUNFAN profile image
LEEJUNFAN in reply to Bluecat99

Hi there!

Thank you for your response.

If I may leave my e mail address then it would be nice to perhaps converse with each other from time to time.

Always good to share as they say.

This is my e mail:

Jones781@hotmail.co.uk

Best Wishes

Tony & Kim

Bluecat99 profile image
Bluecat99 in reply to LEEJUNFAN

I have sent you an e-mail!

Rachh8 profile image
Rachh8

Like bluecat I don't know of anything but maybe a general carers support group might be easier? Alternatively maybe it could be you could start one? :)

shurdygirl09 profile image
shurdygirl09ModeratorVolunteer

Hi Tony & Kim Yes there is a Support group for Caregivers .Its Called FND Hope Carers/Caregivers (https;//facebook.com/groups/6322134...?

LEEJUNFAN profile image
LEEJUNFAN in reply to shurdygirl09

Hi there!

Thank you so much but we don't use Facebook but I may try it out and see what happens.

Best Wishes!

Tony & Kim

Switch1975__ profile image
Switch1975__

the only carers support group i know myself covers all carers/ caregivers in the uk are the following carers .uk , career center sunderland.

they have sometimes been my life line as even though i have dissociative episodes im a carer to my partner how has bowel cancer and other health condition. but they are only a phone call away . hope this helps .

as they are there for all carers young and old .

Seaotter2020 profile image
Seaotter2020VolunteerFND Hope

Yes on Facebook ! FND hope has a website strictly for carers. Go to the main Facebook page and you should find it there. Otherwise Email me lauren@fnshope.org anfpd I will send you a link.

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