Appointment today with my neuro. Confronted him with muscle atrophy/wasting in my hands, more predominant on right side, including leg. This is not part of FND, I stated. What is causing this? He doesn't know. Also abnormal test results documenting double vision, other symptoms, etc. He said he couldn't pull together the test results to give another name to what I have. He is very supportive, kind and patient, not dismissive, yet it seems he is not looking further. This catch-all diagnosis seems to leave us hanging. He has nothing to offer as far as treatments. He did say that 10 % of the patients were helped with CBT. I tried that and the therapist told me I didn't have psychological issues causing the symptoms. CBT didn't change anything. We discussed MRI with finding that when I put the exact sentences written on the MRI report, that even stated 'could be indicative of MS"on-line were definitive of MS. He dismissed them, saying the radiologists have to err on the safe side?. The white patches were from aging. Are the drs afraid, after years of being ill and searching for a diagnosis, not going to change their opinions? He said he wished he could say I had MS, then he could treat me? I am confused, discouraged and know there is something else going on in my body. I walked out of his office in tears. I am considering an appointment with an endochrinologist to explore mitichrondrial dysfunction.
Feeling very low tonight.