About a year ago I started having really bad pain all over and every joint in my body was stiff all of the time. I went to a rheumatologist and she thought I had fibromyalgia. I was in so much pain all of the time and I missed a lot of school because of it. My doctor told me it was psychosomatic because of my past. I had no idea what that meant and didn't care, I just wanted better so she put me in physical therapy to try and help. I went their maybe three or four times and she told me that i needed to see a neurologist because every time I move my hands or legs, stretch them or do normal exercises they twitch like crazy then randomly spasm for like a half hour after. My doctor looked at me and said that there was no reason for her to send me to a neurologist but when my physical therapist mentioned a physiatrist for pain management she gave me a referral. i went to mary freebeds 10 week program but slightly before that I started having seizures, blacking out, forgetting who and where I was, and forgetting basic communication. I had stopped seeing my doctor because I had moved and she wasn't helping me very much so maryfreebed sent me to get an EEG which they said was fine. I never got any explanation to why anything was happening but sometime after the seizures started my pain eased up a lot and then after 3 months of up to 6-7 seizures a day, they just stopped all at once and my memory has came back a lot but I am still struggling with it. After the seizures stopped, my legs started going numb and tingly, I've always been clumsy but I started falling a lot more than normal, I have problems moving them and sometimes they just give out on me, my right arm has started going numb just like my legs but doesn't last nearly as long, I have a lot of strange sensations and most of them are painful. My vision is now blurry most of the time, I still struggle with normal communication skills and I see purple a lot. I got a new primary care like 5 mins from where I lived and she sent me to a neurologist which I seen for the first time a few weeks ago and he diagnosed me with functional neurological disorder and is sending me to a neuropsychologist. My neurologist is connecting with my psychologist and primary care to see what they think of the diagnosis. Are my symptoms going to continue to build off of each other like this? Will they ever improve? I know not many doctors are aware of this diagnosis but is their a specific specialist I should be seeking? I am getting ready to start college in the fall and and hoping to get a job this summer should I expect these symptoms to get worse, stay the same, or improve?
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