Does anyone else fear becoming agorap... - Functional Neurol...
Does anyone else fear becoming agoraphobic? I have always said I would never let that happen but some days I'm too symptomatic to go out.
I make excuses not to go places, it's easier to control the FND at home where there is less stimulus.
I'm not sure if its a fear or more of a reluctance to step out my front door.
when i rel bad i feel embarras so no want go anywhere as all get is look it take lot go place as alway sure people look and get comment
I find I avoid clubs with loud music or flashing lights where my senses feel overstimulated and it is hard to be comfortable because of the large number of people in a confined space.
I make excuses too, or I at least consider so many things before accepting even a simple invitation. Who am I going to be with? If I have a 'problem' and need to be brought home, I'm not just going to be affecting my day but other people's too. If I'm brave enough to venture out on my own, I wonder what if I can't get back home safely on my own, I always have to make sure I have my phone with me and at least one person on stand by in case I need help. I'm finding more and more, it's just not worth it. I'm on a first name basis with the Peapod delevery guys from Stop n' Shop, lol. Thinking seriously about getting a Service Dog to help me feel more confident about going out more.
I don't fear becoming agrophobic but I don't go out as I have so many siezures around 30 a day I am terrified of the thought of people seeing me and as I stay fully conscious and aware of what is going on I am more sensitive to this issue. people can be embarresed, horrified and some pit you, I don't want pity not the attention. so I prefer to stay at home.
I seem to be going out less and less! Tend to opt for visits to a friends house or it if
being taken out for a drive . Don't do busy places like shopping centres alone or very much.
Winter I tend to hibernate, so feel like I need a push start ! Trying to pluck up the courage to
go out of a short junt around the estate on my mobility scooter, keep promising that I will do when the weather gets a little warmer. The fact that getting ready is such a slow, painful process that the effort sometimes just does not seem worth it!
That's pretty much how I feel too. I don't have seizures every day but I have symptoms that I get in between them caused by seizure activity and I never know which time the symptoms are going go in to a full blown seizure, where I fall and can't get back up (my legs get so spastic when I try to move and don't do what my brain is telling them to. I don't lose consciousness ever either, I almost wish I would so I wouldn't be aware of every horrific moment of it. If I happen to be in a store, forget about it, they insist on calling an ambulance for me, probably for liability reasons, even though I just need help getting home and to my bed until it passes. I'm glad I found this place, I was beginning to think that I was the only person that went through this stuff. I never run in to people that say "Gee, that happens to me too". It can make you feel almost like you're nuts. That's how I feel sometimes anyways.
