How's everyone doing today hopefully you are having z good day .
I phoned my local hospital today checking on my ENG appointment but still on waiting list also my neurologist wanted bloods done but nothing arranged.
I get so frustrated hanging around with not knowing what's going on with my health I still can't go back to work until I get a diagnosis but how long is a piece of string I know one day I will get told I've lost my job because of health issues.
I get good days and bad days more bad than good its like my head feels fussy and its miles away left eye feels so heavy I could say sod it I'm staying in bed and just sleep my up and go as definitely gone .
I also suffer from Nf1 and anxiety I don't want to get to the point of no return.
I'm feel I'm useless to my wife and definitely my company.
I've had my rant so stay well and please keep in contact.
Written by
Littlecook
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hi, unfortunately the nhs work on the slow and steady method. My GP put in a referral for ENT for changes in my tinnitus and they refused (but didn’t tell anyone) , I found out by checking my records. It has been reordered and I have found out that I will not be seen until October and I have another for sleep clinic that is due in June was ordered in December 23 . You will find you have to be / learn patients as it runs at a snail’s pace. My last neurology appointment was last year but took 4 years to get it. And my latest was an x-ray results which took over 8 weeks ( radiologist told me 10 days, gp told me 14 days and the hospital told me 6 weeks). The doctor called me and told me the results are normal so I enquired where the emphysema was and they just said it says normal and that’s all they can say . To say I am disappointed is an understatement. I hope you get your diagnosis soon my FND took 19 months. Good luck. Kevin
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