Living with FND but not letting it rule your life - FND Action

FND Action

642 members157 posts

Living with FND but not letting it rule your life

4 Replies

Hi All, I was diagnosed last year after a minor car accident, cutting a long story short and missing out the shocking and disgraceful treatment I had in hospital and non once I had been discharged, I would like to meetup either for a coffee and chat or if you would rather do a zoom chat if you prefer. Its time if we cannot get any help from the NHS we help ourselves.

In between have a good week, stay safe and if you fancy a chat let me know.

All the best,

Phil

4 Replies
andreasimonne profile image
andreasimonne

Hi Phil, I have had fnd for over ten years, my symptoms are numerous and affect me differently on a day to day basis, I never know how I am from one day to the next which makes life very challenging and isolating. It would be good to get in touch.

cocoferraro profile image
cocoferraro

I would like to meet up for a chat too, which area are you?

andreasimonne profile image
andreasimonne in reply to cocoferraro

I am in oxfordshire

cocoferraro profile image
cocoferraro in reply to andreasimonne

Im in canterbury, its a pretty long way,,,,,,,,,,,,

You may also like...

FND - Can no longer poop! Help!

diagnosed with FND Oct 2019. All the typical symptoms you read about. However, since June 2020, I...

FND / Newly diagnosed

reading (and learning) from the various posts. Thank you for listening Kind regards

FND was in denial but now needing help and no healthcare professionals seem to have heard of it.

\\"its nothing we can deal with here we will send you to the neurologist\\", waited 12 weeks and...

FND/Cervical Dystonia ( functional hyperkinetic movement disorder (

FND with Cervical Dystonia (neck spasms ) ?What helps manage symptoms ?I have trouble eating...

Has anyone been able to claim PIP for FND

independence payment for FND. I've lost my job and cannot work and my husband has had to give up...