Hi everyone.

[FerretMum1982]

Hi all,

I've only just discovered this community. I've been struggling with FND since 2016, and also have Fibro.

I haven't got a question yet, just thought i'd introduce myself.

I'm Laura, I'm nearly 40, I'm married and we have a lovely son.

Also we are avid Animal lovers, with 2 ferrets, 4 cats, a terrapin and in our natural pond we have a huge family of newt babies ( first time ever we've had them this year, so it's been facinating to see them grow).

I love to read, draw, colour.

I used to teach Zumba, but due to my FND, i'm barely mobile.

I want to be a counsellor, to help raise awareness of FND in my local community, and help support others who may need it.

Looking foward to talking to you all.

Laura xx

[Lucy-15]

Hi Laura and welcome to this super supportive group of fellow FND’ ers. Your post does sound a lot like myself… so thought I’d say Hi.

I love animals too and have a Yorkshire terrier, that I walk much better with !

My mobility issues started back in 2014 when was I young 46…. I love sport and. dance. Joined a adult over 40s ballet class, but it got too much.

Even tho I dance better than I walk.

I started taking counselling skills courses, as like you say, this really does make you think about how to help others for sure.

On a positive note, I managed some waking yesterday at RHS Wisely huge gardens ( you may know it if in the south east of England) then the hired mobility scooter was free… what an utter relief and I could see the rest of the stunning gardens…. Huge relapse …. as soon as we got home but hey.. it was worth it for my birthday special day out !

What have you tried to help so far?

Always interesting to learn tips from each other. Enjoy your bank holiday if in U.K.? Lucy x

[FerretMum1982 in reply to Lucy-15]

Hi Lucy,

Thank you for your reply xx awww I'd love another dog, sadly lost our last dog in 2020, and she's still very much missed.

We are in the North west of England, and managed a couple of days away for the first time since 2016, which was nice, but exhausting.

Sounds like a nice visit I love visiting gardens. Hubby is working today so I'm at home keeping my little lad entertained at the moment.

Quiet bank Holiday...kind of lol.

Hope you're OK x

Love Laura xx

[Tracey0101]

Hello Laura I'm new on here and my name is Tracey and I'm 54 and I have a lovely son but I'm separated from my ex husband ready to go through my divorce soon and I have fybromyagia as well and waiting for the Neurologist as I have symptoms of FND and waiting since last September and its really bad 24/7 painful from the time I wake up until I go to bed and it's very horrendous pain but I just carry on as I still have a life to live. I am not going to let it beat me I'm stronger than it and I'm in control not it as the more dwelling on it as I haven't got a life if this controls my life so I go out each day 7 days a week even when I can't go that far I still go out for some fresh air and it made me feel better and it did wonder for me for my mental health only went out for about 10mins but I was so glad I went out and I have been going further as well some days but I still go out each day I would be bedridden if I didn't have amazing carers who help me out of bed each morning with their help I can get out and live my life independently and life is much bigger when we go out we have only a fraction of life indoors but when we go out life is much more bigger and it's such a joy to see the truth that I can go out despite of my disabilities and I am in a wheelchair can't walk in horrendous pain but I see that I still have a life to live and I still living and if I can do my best today then at least I did do my best even to smile at someone who maybe sad as I feel that housebound and limiting ourselves is worse and even if I couldn't speak or hear housebound is much worse because we stay in for months and months and maybe that goes into 1yr and much longer I have been there. But I got through it and I will never stay in again. I have a Christian belief and our purpose is more than staying in all the time which isn't our purpose for our lives I raise money in my art work.

[Tracey0101]

I love doing art work and I raised lot of money for those in need and vulnerable people.