I've only just discovered this community. I've been struggling with FND since 2016, and also have Fibro.
I haven't got a question yet, just thought i'd introduce myself.
I'm Laura, I'm nearly 40, I'm married and we have a lovely son.
Also we are avid Animal lovers, with 2 ferrets, 4 cats, a terrapin and in our natural pond we have a huge family of newt babies ( first time ever we've had them this year, so it's been facinating to see them grow).
I love to read, draw, colour.
I used to teach Zumba, but due to my FND, i'm barely mobile.
I want to be a counsellor, to help raise awareness of FND in my local community, and help support others who may need it.
Looking foward to talking to you all.
Laura xx
Written by
FerretMum1982
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Hi Laura and welcome to this super supportive group of fellow FND’ ers. Your post does sound a lot like myself… so thought I’d say Hi.
I love animals too and have a Yorkshire terrier, that I walk much better with !
My mobility issues started back in 2014 when was I young 46…. I love sport and. dance. Joined a adult over 40s ballet class, but it got too much.
Even tho I dance better than I walk.
I started taking counselling skills courses, as like you say, this really does make you think about how to help others for sure.
On a positive note, I managed some waking yesterday at RHS Wisely huge gardens ( you may know it if in the south east of England) then the hired mobility scooter was free… what an utter relief and I could see the rest of the stunning gardens…. Huge relapse …. as soon as we got home but hey.. it was worth it for my birthday special day out !
What have you tried to help so far?
Always interesting to learn tips from each other. Enjoy your bank holiday if in U.K.? Lucy x
Hello Laura I'm new on here and my name is Tracey and I'm 54 and I have a lovely son but I'm separated from my ex husband ready to go through my divorce soon and I have fybromyagia as well and waiting for the Neurologist as I have symptoms of FND and waiting since last September and its really bad 24/7 painful from the time I wake up until I go to bed and it's very horrendous pain but I just carry on as I still have a life to live. I am not going to let it beat me I'm stronger than it and I'm in control not it as the more dwelling on it as I haven't got a life if this controls my life so I go out each day 7 days a week even when I can't go that far I still go out for some fresh air and it made me feel better and it did wonder for me for my mental health only went out for about 10mins but I was so glad I went out and I have been going further as well some days but I still go out each day I would be bedridden if I didn't have amazing carers who help me out of bed each morning with their help I can get out and live my life independently and life is much bigger when we go out we have only a fraction of life indoors but when we go out life is much more bigger and it's such a joy to see the truth that I can go out despite of my disabilities and I am in a wheelchair can't walk in horrendous pain but I see that I still have a life to live and I still living and if I can do my best today then at least I did do my best even to smile at someone who maybe sad as I feel that housebound and limiting ourselves is worse and even if I couldn't speak or hear housebound is much worse because we stay in for months and months and maybe that goes into 1yr and much longer I have been there. But I got through it and I will never stay in again. I have a Christian belief and our purpose is more than staying in all the time which isn't our purpose for our lives I raise money in my art work.
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