Low

[Jessdonna]

I have never felt so alone as i do what is the point in living fnd as turned me into a stuttering fatigued in pain reck.told im fit to work spaced out cant drive stairs are too much husband self employed but as to look after me.

[Norma1956]

You have to adjust your life to your illness have you appealed to esa and pip try again i know it is hard but you have to help yourself a doctor once told me if u do not use it u will lose it and things will get better i have neads which means i can go down at any time in shops anywhere it is a nightmare

[Jessdonna in reply to Norma1956]

Thank you for your repy. How do you cope. I'm getting worse not better. My help at a fatigue centre is on hold due to blood in my wee sample got a hospital appointment. it's been over a year not working not seeing my family due to noise and speech problems. I feel not myself and hate it. My husband will some get sick of me i am no fun anymore embarrassing. I wouldn't blame him if I get worse which I have. There's no help.

[Jessdonna in reply to Jessdonna]

I am not convinced i have fnd ive got no history of trauma. A head doctor cant help me. My nails skin and hair seems to be dying. I look so ill.

[Jessdonna in reply to Jessdonna]

This all started with blood in my wee backache and feeling ill. Doctor said it may turn into a bladder infection so put me on antibiotics. I have never been right developing all these symptoms. The doctor thought i had ms but clear scans. I cant carry on like this for another year

[andreasimonne]

yes I can relate to feeling alone and isolated with this condition - I also feel most days what's the point? Being unable to plan to actually do anything means I end up spending most of the time alone because the friends I have are all in good health and can make prior arrangements and my husband works very long hours full time. Lack of support is an issue too. Life as it is now sucks!

[Jessdonna in reply to andreasimonne]

I am so sorry your alone so much. I was having a good rant at the time. I feel lonely at lot of the time but cant handle company for long. Im hopefully coming to the end of a big fight winning at appeal with ESA which as made my condition worse. They have put me wrag but now fighting again for support group. I feel i need time to concentrate on getting well instead of constant worry. If we improve in our conditions im sure we can all fall back into normal life. Fingers crossed xx