Struggling

[Norma1956]

I am suffering suffering from neads or fnd I am finding it hard a present and am looking for people in the same position so that we can offer support and try to understand what is happening

[abb356]

Norma,

In sorry to hear that you are alone but making this step you'll find that actually, you're not only a part of a select group but there are many of us out there!

I have NEAD but its not very bad. Whilst on a recent FND programme two others of our group of four suffer horrendous NEAD. I just burr off for a couple of hours. The other two have the same but one has seizures whilst the other wakes up crying out laughing. Everyone's experience is slightly different. Mine I now know comes from different traumas that I've had in the past. I have been given strategies to cope with them and I suspect the others in our group have too.

How does yours manifest and do you remember your first?

[Norma1956 in reply to abb356]

I am still under investigation but they have mentioned neads I fall on the floor anytime anywhere and shake and then are very still until I open my eyes I can hear everything that is going on but I cannot move or open my eyes but sometimes i will just sit and stare at something then i will have an episode as the doctors are calling them it is really strange I had 35 episodes in one day about 12 years ago then not any for years then I started a few years ago and would have them 1 or 2 a year and then 2018 about January they started with a vengeance and now I have about 10 to 12 a week

[Norma1956]

I have like black outs I just fall on the floor and shake but I can hear everything and feel everything but I cannot open my eyes it can happen anywhere at anytime I cannot find a trigger but then when I open my eyes I am perfectly normal but depending how many I have it makes me exhausted