T grades

[juliekeith_lewis]

Hi ... I'm confused by letter from hospital t3,t10 t13 ?? In his ribs in his chest bone in pelvic in his bladder in his scull

[Desanthony]

Probably best to have a look at the Postate Cancer UK leaflets or Macmillan Cancer leaflets - you can access them on line and download them if you wish, or call the Prostate Cancer UK nurses. The prostate cancer UK nurses are available until 9pm on Wednesdays but consequently I think they do not start until 10am. It is an 0800 number so the call is free and I have found their advice invaluable. The number is 0800 074 8383. If you go on the Prostate Cancer Uk website you can also e mail the nurses with your questions - usually they get back to you by e mail within 48 hours - quicker if they think your query is urgent. The call is answered immediately and the help they give is second to none. You can do the same on the Macmillan Cancer UK prostate website. I can't begin to understand why there are different numbers - presumably they are for different areas. You can also call your consultants secretary, your Hospital key worker/cancer nurse or the Macmillan Nurse at your hospital to get an explanation. Maybe your GP surgery could also explain or steer you in the right direction.

[Desanthony in reply to Desanthony]

Hi, Got the Macmillan specialist nurses telephone number for you as well. Again it is a free telephone call and they are open 8 - 8 I think. 0808 808 00 00. Give them a call. I would also suggest you join a local cancer support group. Maggies is absolutely brilliant. I am going to my local Maggie's prostate cancer support group today. They offer support to the sufferer and all their family. Offer courses and just wonderful support. We have one man who since his diagnosis just spends his day there talking to everyone who comes in. He says it saves burdening his wife and family with it all, all the time, and treats it like going to work. He gets help and support from all the other sufferers and also professional advice from the people who work there.

[juliekeith_lewis in reply to Desanthony]

Morning thank you for your advice x

[Desanthony in reply to juliekeith_lewis]

I have asked around and the T may stand for thoracic that is the different vertebrae in the spine where the cancer is situated. The neck would be cervical so C3 C4 etc then Thoracic T3 T4 and so on and then Lumbar L3 and L4 etc. Still worth asking for clarity from your Doc or from a health professional.

[juliekeith_lewis in reply to Desanthony]

Thank you for taking the time out to find out for me x

[Desanthony in reply to juliekeith_lewis]

Hi, How are things going for you? I don't know why I have never mentioned this to you. Ther is a man in my prostate cancer group at our local Maggies Centre who has Stage 4 cancer with spread to hips, back, lungs and brain. He would not take chemo but has for the past 4 years taken CBD oil. In the first instance he got it from the USA and it was quite expensive - about 400 for 3 months worth but now buys it here as it is now legal. The brain and lung spread has disappeared and his PSA is undetectable. He stopped taking the CBD oil for 3 months and his PSA went sky high. So he went back on it and his PSA is undetectable again. I take CBD oil for pain and had been taking the stuff you can buy in Holland and Barrett. Once I had to take my heart tablets earlier this year I asked my pharmacist about it and he put me in touch with another pharmacist who had made a special study of it to find out if I could continue taking it. I can and still do and this pharmacist is now working out which dose and type is good for me. This CBD oil again is a little more expensive than the bottles you can get at Holland and Barrett but the Holland and Barrett CBD oil is weaker. At present I am on a medium strength oil in capsule form. Seems to be doing a lot of good at the moment. I just hope that now that CBD oil has been legalised here (silly it wasn't previously because it is not in any way the same as cannabis) that now we can have proper medical research into it's qualities and efficacy for many conditions. By the way neither this guy John who, like I say has been taking it for 4 years or I have noticed any side effects and we deffinately don't get high on it! All that type of thing has been removed. It may be worth trying as it might work. Even John's doctors do not believe him but the proof is there in him.

[juliekeith_lewis in reply to Desanthony]

Hi thank you for getting in touch .. we went back to hospital Tuesday he has now six months if that so tuff times a head thank you for all your advice x

[Desanthony in reply to juliekeith_lewis]

So sorry, to hear this. If it were me I would definitely give the CBD a try - nothing to loose. All I can say is that we are thinking of you and hope you have a good support network around you at this dreadful time. Suppose you just have to make the most of everything and take each day as it comes. Sending hugs through the ether. xoxoxo