Your Questions for the experts: Dear MPN friends... - Fight MPN

Fight MPN

824 members265 posts

Your Questions for the experts

andrewschorr profile image
2 Replies

Dear MPN friends: I am so excited that ASH is in my new home city, San Diego later this week. And I am also excited we've got a great panel discussion lined up about MPNs and news for patients: Drs. Catriona Jamieson, Steven Oh and others and an interview planned with Dear Dr. Claire Harrison from the UK. Please be sure to be signed up with the MPN community on patientpower.info and send in your questions to mpn@patientpower.info. Also, we'll do live daily wrap-ups at 5:30 Pacific time (late for the UK!) Sat-Monday. And everything will be posted as replays after that.

Written by
andrewschorr profile image
andrewschorr
To view profiles and participate in discussions please or .
2 Replies
Kiturah profile image
Kiturah

The itching has gotten very bad at times, and when worst is associated with orange peel looking skin swelling. What can I do about the itching?

tclementi profile image
tclementi in reply to Kiturah

Thanks for submitting your question! I've passed it along to our producers who will do their best to get the experts to answer it. Make sure you're signed up for our Daily Wrap Ups happening this Saturday-Monday as they might address itching there as well: zoom.us/webinar/register/72...

Not what you're looking for?

You may also like...

Update 7.0

Things have been coming along pretty well. Iron levels are gradually increasing, resulting in an...

Risks in taking and not taking aspirin with hydroxyruea, especially when older

I have been taking hydroxyurea since Nov 2020 when diagnosed with Essential thrombocytosis, my...

Anyone else with MDS/MPN suffered compression fractures?

Just found out the pain I have had in my back for over four months is due to compression...

Overheating at night

Hi All I wondered if anyone else has been suffering with overheating at night time. It’s not hot...

vegetarian with pv

hi everyone, six months ago i was diagnosed with et by local hematologist. his diagnosis and...