when I walk the pain increase to apoi... - Fibromyalgia Acti...

Fibromyalgia Action UK

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when I walk the pain increase to apoint where I have to sit i have back ground pain then this 2nd pain anyboby got same keep smiling dave

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simmo21
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yes i do.. when i walk i have to take several stop breaks every few minutes and then i have to sit down to rest.. it gets very maddening at times. at least on holiday if you have to stop there is usually a good pub to sit down at for a soft dirnk of course.....

Ginsing profile image
Ginsing

Yes I do i have severe pain in lower back followed by hip pain takes your breadth away I mentioned it to rheumy he said he could not help - so get on with it sorry not more helpful life is a bummer at times. x gins

boxter profile image
boxter in reply to Ginsing

I know the feeling,i have a lot of pain in my lower back and hips with sacro ilea disfunction also my muscles around lower back and thighs ache like toothache.I am so fed up with pain every day,it's there when you wake up and it's there when you go to bed.I have an appoitment with the rheumy consultant in 10 days time,i really am hoping for a miracle cure but i know i will be disappointed when she cannot give me one.Joking apart i hope she can help me.

Take Care All

Carol X

Brambleberry profile image
Brambleberry

Yes I have a few different pains going on at the same time. I have the tenderpoints, and then I have what I call the intravenous drip containing causic soda! Because it burns every inch of my body. Skin, muscle tendones the lot from head to toe...and not sure which is worst. Its all there in the background even on better days. I tweak my meds according to where my pain is...and I find a trycylcic can be increased PRN and work within a few hours...I usually take 50mg but I can take up to 100mg depending on severity...I rarely do because of side effects, I may take 75mg. I can always add in an NSAID or go on to my stronger pain killers...

Sarah-Jane profile image
Sarah-Jane

Yes.

Since February 2011 I have had pain in my hips to varying degrees. It is my main area. I can no longer walk my dog which I got to get more fit and I cried buckets over it. Its very depressing when you are limited to short distances and have to rely on others to take you places, maybe where they do not want to go so you have to wait until someone does want to take you!

I got myself a wheelchair for distances so I can still shop, and later found out that my doctor could have refered me to the hospital who would provide me with a chair, which they now have. I applied for DLA and was turned down, to be reviewed that September. I wrote to them and emailed them pleading with them to think again and let me have something so I could have my independance back. They gave in and I now get the full amount of mobility allowance which would cover a car or mobility scooter - I chose scooter so I could walk my dog.

I have osteoarthritis in my hips, back, feet and hands - only mildly, but that is what triggers my FM. I have been diagnosed as having FM as I have all the sore points and if over do something I soon find weak areas.

I am on co-dydramol for break through pain, Lyrica and Amitriptyline help generally.

I hope my experiences are of help to you. It took me a long time to come to terms with using the wheelchair. Pride was in the way at first, but now I have fun in it and enjoy being able to fight for the disabled by challenging peoples reactions to me in it! I feel stronger.

In my mobility scooter I can take the dog for a walk, go shopping and also challenge peoples perceptions of being only for 'little old ladies'. I have my freedom back and it hurts far less.

soft hugs

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