is there anyone in the liverpool area... - Fibromyalgia Acti...
is there anyone in the liverpool area who has had their esa stopped ? just wondering what they said you were capable of ?
Hi, new to this web site. I got a letter from my GP and asked Welfare rights to fill in my form. I was told I would prop need to go to an interview. Got a letter from DWP over ESA and they said I dont need to attend and sorry for any upset this might have had on my health. My suggestion get a letter from you GP.
thanks to both for replying i have read thru those things and found them very useful ,,, and i have asked my gp to do a letter for me as she was furious they assesd me as capable given she sees me most days as my daughter is seriously ill as well
I had a phone call from them last week & they sent me a esa form to fill in...and they told me my esa will be stopping on 30th April.....so stressed about it all....what do they expect me to live on while I am feeling so bloody bad....dame them
they sent me to sign on for work debbie i was that upset when i got there and could hardly move ,, the ladies i spoke to advised me to appeal the decision, they could clearly see i wasnt able so why ddnt the damn dr ? ////speak to your gp deb and ask for a letter to submit to them
hi trisha64 they stop my esa i went 2sign on last week & the lady asked me was i ok & i stared crying cos i was in so much pain when i told her what i had she had 2look it up i am just waiting for a appeal i have a 12yrs old son & i WILL not let it beat me i did not have him for him 2look after yet xx
Hi all, I have had a lot of experience in the last year with what you're all going through. I have had no end of hassle from the DWP and it started when I went for my medical assessment with ATOS. I was also assessed as being fit for work and the 'medical professional' didn't even put on their answer sheet what I had talked about. I then appealed and wasn't even told I could request a hearing so they sent me a pack of info including all the letters I had sent them to say I still could work. So it went to tribunal and last month I won my tribunal, but I went well prepared.
To be honest, it depends on where you are as to what happens, although the tribunals and the DWP have a set list that they work from to assess if you are fit for work. It also depends on your personal circumstances. What worked for me in Oxford might not work where you are. I think I was lucky having a panel who didn't judge me. I went dressed for court, although some advocates say don't bother, this can go against you. And I took every little bit of correspondance that had gone between myself and the DWP. If you have been diagnosed by a specialist, make sure you get a copy of the letter, I think this helped me. Get people who know you well to write in support of you, documenting on how they have seen you decline, and what happens. One of the silliest questions I was asked, was can you put a hat on? I said yes, but then went into great detail on how much effort it took.
If your doctor isn't helping you - see a different one within the practice, not all GP's understand fibromyalgia as it is a fairly newish recognised condition. It is important that you get the correct GP support, and if there is a pain clinic near you, try and get a referral. I have my first appointment in a week - but had to kick up to get it!
I also contacted my local MP - that is also something worth thinking about... if anyone wants to inbox me I will see what I can do to help - but I would research your local area to see what you can get.
Gentle hugs to everyone!!!! xxx 
evie you keep fighting sweetheart im lucky all my kids are grown now but i know how exhausted i am afyter being with my grandsons xxx
thanks for that miss kittycat ( love the name ) xx
my best friend has written a letter and my gp will be ,, i dont see anyone much on a day to day basis, but when mark ( my best mate ) took me shopping in asda he was horrifed as i had a total spazz out in the crowds shaking and crying ,, so now i dont go out much at all ,, trying to explain to them makes me stutter and tearful so i end up looking like the villuage idiot x
Glad you like my nickname! I'm cat mad so thats what I call myself!
I'm like you, I don't go out much now, and hate crowds as I'm absolutely terrified of getting hurt.... drives my other half mad but hes usually fairly good about it!
Try deep breathing when you're out - I find it helps calm me down! Gentle hugs xx
sorry for typo my hands feel like dyslexic spiders lol x
