Suffer symptoms on daily baisis! - Fibromyalgia Acti...

Fibromyalgia Action UK

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Suffer symptoms on daily baisis!

Catwoman2409 profile image
3 Replies

hi ope all well, jus a thought! As i have been suffering flare ups of exact symptoms on a daily basis for last two yrs, some days extremely bad, like yest tday it most of bin the hottest longest hot flush i had experienced since i got this cruel disease it lasted all day had no energy felt like i dint hav strength to keep my eyelids open or move my jaws at all, tday woke up with stomach pains diarhea and headache but temp normal, i had to stop my sis going shoppin for me yest and tday cos as i already have a sis in isolation due to symptonms (works in prison service and went in iso week ago) i am house bound due to no pain relief as got told nothing wil neva work 2 yrs ago, then basically i got told tgat i jus gitta live with it after changing docs twice, anyway i want to no how the hell will i no if i had it as all the flare ups that are gettin more aggressive i have noticed, do i put it diwn to all the stress i feel, i darnt let any1 shop for me until symptons calm down, ps fibro fog extrenely bad ,soz if doesnt make sense to read. Stay safe all🤔

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Catwoman2409
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3 Replies
Lou1054 profile image
Lou1054

We have family dropping off our shopping, they knock the door and stand back. None of us have symptoms just following the guidelines. x

SusieSquirrel profile image
SusieSquirrel

You will have to let your sister do shopping for you eventually. As long as you follow what lou1054 said everything will be fine.

As for your doctor if think you should see a different one. Nothing totally works for me but the edge can be taken off.

I found vit b12 helps for fog.

The diarrhea and headaches could also be stress and that could be the reason for more flare ups.

Take care and stay safe

YASMINTINA profile image
YASMINTINAFMA UK Volunteer

Try and get family to knock door and leave you some essential s, I find I get very hot at night and years past an early menopause ,so I drink plenty of fluids and stay off any caffeine from about 2pm each day, consistent flares must be awful for you , would you consider trying a different doctor or even different surgery. Some doctors still have this attitude unfortunately but eventually I got to see a different one and is very helpful , right approach and medication that has helped ease fibro symtoms , xxx

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