I have recently started getting restless leg syndrome is this a symptom of fibro, it drives me crazy I can't sleep my legs won't rest,

[millymoll]

[TheAuthor]

Hi millymoll

I sincerely hope that you are feeling as well as you possibly can be today? I am so sorry to read that you have recently started with restless leg syndrome, and I genuinely hope that you can find some resolution and relief to this problem.

I have pasted you the NHS Choices link for restless leg syndrome and I genuinely hope that you find it useful:

nhs.uk/conditions/Restless-...

I have read posts from many members who have the same issue as you and it is a part of Fibro for many of us. However, it can also be a sign of other things, so it is always best to get new symptoms checked out by your GP just to ensure that there is nothing else going on and to keep your GP up to date with how you are getting on.

All my hopes and dreams for you

Ken x

[millymoll in reply to TheAuthor]

thank you yes i went to drs who took blood tests nothing else going on ,i will look at the link x

[fibro10]

Himillymoll Morning yep it sounds like it could well be.I use a pillow between my legs at night ghtsdose help a little I had a bad few days and nights with it this week

[millymoll in reply to fibro10]

i will try that thank you ,they drive me up the wall x

[Hidden]

Hi millymoll

This is a question which often pops up and many members appear to have problems with it and it can be a symptom of fibromyalgia.

Ken has given you a useful link to NHS choices regarding what RLS is and it's symptoms so I'd like to give you a link to our 'About Fibro' section of our Mother site fibroaction.org where it discusses 'What Are The Symptoms' of Fibromyalgia. The page on the link can be downloaded as a printable Fact Sheet

fibroaction.org/Pages/What-...

Also, I thought you may like to read some other posts discussing RLS

healthunlocked.com/fibroact...

healthunlocked.com/fibroact...

healthunlocked.com/fibroact...

I must stress that I'm not a doctor and any advice that I have written or which is in a link should never override the advice of your own medical care providers

Please go and speak to your GP about this as they may be able to help you

Healing Lavender fluffies filled with sunshine smiles

xxxsianxxx

[millymoll in reply to Hidden]

thank you i will follow the links i have been to drs but cant help ,i had blood tests done ,xx

[bwaite]

No it is part of the fibro I can't

sleep because of it! Try putting

a pillow between your knees

It may help a bit. xxxo

[millymoll in reply to bwaite]

thank you ,yes fibro 10 suggested this i will deffo give anything a try xx

[mollyandmaisie in reply to millymoll]

I have also been prescribed rupinerol. and it works. rls was ruining my life as I never slept with it.

[Hidden]

Some people swear by a bar of soap put under your bottom sheet near your feet. I have never tried it as my restless legs are controlled with the drug Ropinerole.

I hope you find a solution soon because I know what kind of torture they can cause.

hugs sue xx

[millymoll in reply to Hidden]

thank you for your reply that is a new one on me a bar of soap but who knows.at the moment they seem to have settled down with the help of the suppliments I am now taking .x

[bugsey1993]

Hi there,

I hope you are not feeling too bad this morning. In answer to your question restless leg syndrome does appear to be a a troublesome symptom of fibro. My wife was diagnosed with fibro about 10 years ago. For the last couple of years she has suffered terribly with restless leg syndrome at night. It drives her to distraction every night.Best wishes

Stephen

[millymoll in reply to bugsey1993]

thank you stephen ,my sympathy to your wife i know how she feels i get to sleep for about 30mins then my legs start i could scream sometimes xxx

[shezzz in reply to millymoll]

Valerian tincture very old fashioned natural herb 20 drops in warm water just before bed and you will find it helps a great deal with restless leg syndrome . you can only get it from a real herbalist a proffesional but worth finding it its about 12 pounds a bottle but will last you a year or more safe to take two or three times a week if needed but my and hubbys restless legs are usualy fine for about three or four days after a dose, also check your salt levels a lot of people eat to much or to little salt

if you eat a bag of salty crisps and it gets worse your salt levels are to high cut down

if your symptoms improve well a bit more salt in your food

[millymoll in reply to shezzz]

thank you for this i dont use salt at all really,i never add salt to my food ,maybe a bit of extra salt may help as well .

i tried my local store but they didnt stock it valerian tincture i maybe able to get it on line.thanx again for your suggestions x

[millymoll in reply to bugsey1993]

Thank you for y your reply poor lass it is an awful thing but I'm glad to say some taking magnesium and vitamin d3 my rls seems to have gone for now anyway get your wife to try them x

[nanaber]

Try drinking tonic water in the evening

[millymoll in reply to nanaber]

thank you i hadnt heard of that but its worth a try ,i have a bottle in the cupboard ,hope you are feeling well x

[Coastwalker]

I had excruciating tail bone pain, sciatica pains down my legs connected to the TB pain and irritating RLS which use to start up in the evenings when I put my feet up.

My Doctor prescribed me with D3 as my bloods showed me to be vitamin D deficient.

2 days after taking the D3 for my vitamin deficiency my RLS has never returned, my tailbone and sciatica has also dissapeared apart from a few niggles now and then.

If I forget to take my D3 these pains come back with a vengeance.

Google D3 for yourself.

[millymoll in reply to Coastwalker]

thanx coastwalker i will do that its worth a try as i also have alot of pain in those areas i cannot bear to touch my thighs at times and when the cat gets on my knee i could scream but thanx again xx

[Matrix]

I get it , I just take some painkillers or a pain rub works for me x Hope it helps xx

[millymoll in reply to Matrix]

i am on alot of painkillers but a pain rub may help thank you xx

[bugsey1993 in reply to millymoll]

I hope you are feeling ok today. What painkillers are you on and what do you find helps the most?

[bvlgari]

I have had it for many years before I was diagnosed with fibro. After years of trying herbal remedies,acupuncture,etc I had to go on ropinerole prescribed by a neurologist. Firstly I would go to your gp as it can be a symptom of iron deficiency . x

[millymoll in reply to bvlgari]

I have been to dr iron levels are fine thanx the dr wont give me anything I think because of other meds I am on ,hope you are keeping well

[jillylin]

Hi,

I get this very badly but find that since my GP prescribed Ropinerole, I do much better.

Hugs

Jillyxx

[Shazzzy]

Hi millymoll,

I am same as coastwalker been tsking vit D for about 9 months, it was prescribed by doc as levels where low, simple blood test. No restless legs since.

[millymoll in reply to Shazzzy]

deffinatley give it a try ,i think it is one of the worse things i have had xmy pain can be really bad but not like this rls xxxx

[mitziblue]

I have had it since I was a child. I'm now 52. I don't take anything foe it but do have trouble sleeping, I take a alprazolam before bedtime and it helps. Hope you find something to give you some relief soon sweetheart!!! xxx Mitzi

[millymoll in reply to mitziblue]

thank you mitziblue ,it is a terrible thing ,thank you for your kindness xxx

[mitziblue in reply to millymoll]

Hope it helps you sweetheart. I know the feeling!!! xxx

[millymoll in reply to mitziblue]

thank you mitziblue its good that there is nice ppl out there like yourself that has given me so many options to try xx

[mitziblue in reply to millymoll]

This site has helped me in so many ways. Questions answered and helping others. It's nice to feel useful again!!! xxx Mitzi

[millymoll in reply to mitziblue]

I have been a member for quite a while ,but its the first time I have asked a question and I am overwhelmed at the response ,it is a ver useful site thank you x milly

[Davidshelby]

Im sorry to hear that you are now suffering from restless leg syndrome i know the feeling bery well and ive suffered with this for years but over those years it has just become worse and worse so just hope yours dont get as bad

[millymoll in reply to Davidshelby]

dear David i am ready to climb the walls ,i have had it in the past and im sure the dr gave me something for it but because im on quite alot of medication wouldnt give me anything ,took bloods but they came back ok but i have had some good suggestions and i am going to try them thanks for your reply xxxx

[shezzz]

try valerian tincture 20 drops in warm water twice a week no more and one hour before bed never take during the day . you need a good herbalist and will have to sign a consent form its a very old herbal remedy for shock stress and relaxes the muscles all of them helps some people sleep also and thought its not cheap to buy it lasts months and works with all muscle stiffness and cramps all my family use it after gardening sport ect it wont work on Fibro but it will help restless leg hubby suffers to

[millymoll in reply to shezzz]

Dear Shezzz thank you i have heard of that it may help my stress levels too thanks xx

[Naturegirl]

Hi, I am new on this site - have had fibro for 28 years I have had restless leg syndrome and have been advised to take more magnesium and it sorted it out - give it a try.

[TheAuthor in reply to Naturegirl]

Hi naturegirl

I sincerely hope that you are feeling as well as you possibly can be today? I just wanted to welcome you to the forum and say a big hello! I have pasted below a link to our mother site FibroAction, it is full with useful Fibro information:

fibroaction.org

All my hopes and dreams for you

Ken x

[millymoll in reply to TheAuthor]

thank you ken i am going to look at the links ,you are very kind xxx

[millymoll]

I would like to thank you all for your replies i am sure that between you all that i will get some relief,i wish you all well ,and hope this nice weather cheers us all up xx

[cowre]

Drink tonic water its got Quine in it that helps you can also get Quine tablets On prescription my sister uses it all the time she drinks a glass evreynight hope it works for you xxx

[millymoll in reply to cowre]

thank you i will give it a try ,i have started with the magnesium and d3 i have had a few nights break so i hope they may be subsiding ,thank you all for your help

[Songison21]

When I started having restless legs a couple of years ago (after being diagnosed with fibro in 1993) I started taking Cymbalta at night instead of in the morning. This did the trick for me.

[millymoll in reply to Songison21]

thank you for you reply t bh i have started taking the vitamin supps that i was advised and fingers crossed havnt had an episode since but thank you again xx

[Janelily]

Yip sounds like me. After years and years I hope now I have conquered it. . . . Before getting into bed my bladder must be empty, avoid getting uncomfortable; plenty of fresh air in the room, comfy pillow, comfortable back and don't fight sleep and don't 'hold it in' go to the loo straight away. I know it sounds like normal pre-bed checks, but they are working for me. I try not drink a couple of hours before bed and make sure your feet are warm.