considering the doctors normally say people wouldn't tend to get symptoms with liver disease i sure am encountering a fair few. what kind of symptoms is everyone is getting if any?
I'm going to just list symptoms I have suffered from the last few months
Right upper quadrant discomfort,
Left upper quadrant discomfort,
loss of appetite,
petechiae rash on palm of hands,
change in bowel habits,
back pain,
stomach pain,
excessive sweating,
difficulty sleeping,
night sweats.
I’ve had all of those except the night sweats. The change in bowel habits and stomach pain I attribute it to IBS and the petechiae rash is on my legs it comes and it goes. Thank you for posting this. Now I know I’m not imagining things. When I tell my doctors they look at me like I’m crazy and they tell me me that I’m healthier than I think. When I’m supposedly improving but keep getting new symptoms. I also have spider veins that apparently are not due to the liver issues.
i had to take a photo of the petechiae rash on my hands as proof 😆 its a relief to know there are others having these symptoms too.
Fatigue
Upper abdominal pain mostly left side
Nausea
Digestive and Bowel issues
Back pain and stiff neck
Insomnia
Brain fog/change in vision (intermittent)
Dry skin/eczema/itching
Hair loss
Headaches
Sinus issues, post nasal drip and cough
Plus a lot of fluctuations in thyroid hormones, blood pressure, and cholesterol levels.
I don’t know if all of this is from liver disease but the only symptoms I had before diagnosis were the dry skin/eczema (I think from thyroid disease) and the left side abdomen pain (which I thought was a kidney stone).
with all those symptoms what is your current MELD Score and are you F4 fibrosis you need to go see your hepatologist and have an MRI-PDFF done immediately so you know exactly what page you’re on. a fiber scan is good, but it’s not accurate, the MRI – PDF will tell you exactly where you are so you can address your symptoms directly.
I have NASH fibrosis 1a , diagnosed after having a biopsy, but was told I will unlikely have symptoms until later on if disease progresses, the biopsy was only done in August
F1 is completely reversible. You need to go work out and lose weight and you’ll be fine drink lemon juice, at least 8 tablespoons a day. you’ll be fine I am F4 the beginning signs of cirrhosis, and I don’t have any of those symptoms
I know im fine im just referring to symptoms that people with liver disease as some may find comfort in knowing others have similar symptoms, also with it being mentioned here it might prevent someone thinking the worst, and realise oh it might just be a symptom of my liver disease instead of panicking.
I have been eating healthy and exercising... its not working so far. Seeing the dietician next month so maybe she can point out if I'm doing something wrong
Is the lemon juice thing real? What does it do?
I am NOT a doctor but I will note that a lot of these symptoms (for example, fatigue, nasusea, ) are seen in dozens of diseases. Could it be the liver? Sure. But maybe it's your kidneys or pancreas or just basic stress giving you aches and pains. Maybe it is Covid? The point is, take a deep breath, stop drinking and improve your diet as much as you can and monitor yourself for a week or two, make notes, write down questions, and make an appointment to see a doctor. Once again, I am NOT any kind of medical professional, so feel free to completely ignore this suggestion. Good luck - and don't yet jump to the most terrible conclusions. If things take a rapid turn for the worse, don't wait and go straight to a hospital.
Good advice and compassionate delivery. Nice bedside manner doctor.
I concur doctor.
Do you concur doctor?
😂 anyone? Spy's Like Us ....Chevy Chase and Dan Aykroyd. Just trying to keep a sense of humor can help too. ❤️👊
thank you, I wont jump to worse case scenario, 9 times out of 10 a problem will be something minor i.e. bloating - gas, stomach ache - you just ate something dodgy, etc, etc. 😆
Not sure these are all coming from your liver. Do you still have your gallbladder? Watch what you eat. Red meat can give you stomach pain. Not usually feeling anything on your left side unless it’s gallbladder or spline.
no I had my gallbladder removed, I don't eat red meat. thankfully the LUQ discomfort passed quickly, but its still a symptom I have had.
I have all except night sweats and loss of appetite. My appetite is great... thankfully. It's human nature to attribute any thing that happens to the illness when some of them may be unrelated.
I often had symptoms I attributed to irritable bowel syndrome. Sometimes constipated sometimes loose bowels and a feeling of nausea. I was also 40+ lbs overweight. I first learned about the symptoms of NAFLD after my blood work showed elevated liver enzymes. That’s when I did my homework and discovered symptoms I had been experiencing for some time. Itching with no apparent rash, brain fog, insomnia along with general malaise, and premature graying compared to other family members.
Thanks to the information found on this site, I continue to learn the best ways to improve my situation. I lost 35lbs, exercise more regularly and try to maintain a much healthier diet and overall lifestyle. I also find when I stray from a healthy diet I tend to have a lot of those symptoms flair up again. Even my complexion will appear more sallow. I know this is a life long struggle to keep everything in check.
I would just like to add to this that I have a family friend whom I haven't spoken with in about 2 years and during that time he had cirrhosis and went into total liver failure. He got on the transplant list and within 1 day he received an organ donation. He had the surgery last Christmas and since that time he's had a few complication. He had a bile leakage and something caused his kidneys to begin to fail. He had to get on dialysis for a brief period but he gradually weened off the dialysis. He is doing much better now. The reason I post this is that I got to chat with him last week and I picked his brain about many things. I asked him about pain. He said throughout the entire disease phase up to failure he never experienced any pain. I just thought that was amazing. It doesn't mean that other people can't experience pain but it was certainly an eye opener to me.
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