My son is 11 and awaiting urology urodynamic testing- keeps getting cancelled 🙄. Still has no bowel sensation really - so is still sitting on toilet etc movicol.
The majority of his accidents are at home. He restricts food and drink.
So my questions are
Secondary have no plan apart from medical card to use toilet and ring me if has an accident.
Bowel - where do I go from here - do I chase this been like it since toilet training. Do I nag the GP to investigate more or wait until urology done ?
My son also has low muscle tone and right side slightly weaker. Also has been under Camhs for emotional issues.
I seem to plod on but don’t seem to be going anywhere!!