hi please can you help me!: I was at at... - Epilepsy Society

Epilepsy Society

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hi please can you help me!

C1H2 profile image
C1H2
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I was at at previous Gp surgery successfully taking topimax for my on sudden severe epilepsy which happened suddenly over a period of time beginning with eye disturbance chances in colours when looking at thinks. Loss of balance and feeling week and very tired not even able to

Stand up in the shower and wash my hair. I went to GP who naturally put it down to virus or some random things that would improve which I knew they were just getting rid of me as they had abstinence clue.

A week later in a supermarket of no where I hab the most almighty fall while instantly unconscious with a massive head injury grade one for over 3 hours wit no ambulance. I don’t have any memory of next at leat 10’dats in hospital they sent me home when I eventually got the date right but I still

Can’t remember anything for months. I then moved to another area and things have gone completely down hill and I’m so desperate and can’t get anywhere with the GP they don’t either understand how serious epilepsy is or care about me or my health or all three. My life is completely changed and I’m ultimately dependent on another person to live my life.

The music issue is that they without even discussing with me they changed the medication that was really helping me and I could still function. They’ve also mixed brands of same meds which you aren’t meant to do but would not do anything about it anyway.

How can I get the meds that actually worked without involving the GP that is refusing to even listen or be open minded enough that it’s making me iller being on what he’s Noé put me on.? I’m desperate and I just can’t Copt with the feelings of desperation anymore. I can’t do anything without the GP permission but I’m going down hill and it’s just. Ot fair. Please please please help me. Someone.

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