Epilepsy Society
608 members102 posts

Hello from Montana!

Hello from Montana!

Hello To You All,

I am Jk I was born with epilepsy. I have been through a lot of hard times and experiences with growing up and living with epilepsy and dealing with seizures through out my life. I would love to share my story and help encourage support others here.

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Hello MT., finally someone close! I'm in UT. I would love to hear more if your willing to share. I personally have been dealing with a movement disorder for the last 8.9 years, and with it they always said I had PNES or NES WHICH is psychychogenic non-epileptic seizures so basically they were always telling me it was all in my head. I just didn't believe that so I kept pushing for them to think out of the box. Finally about a year and a half ago my Neuro had me do a 3 day EEG, and she was surprised when the results came back with BOTH NON epileptic AND Epileptic seizures which I had never had before in my life till this stupid disorder.

So being a rookie at this, I would love to hear your story, what has worked for you etc.

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Hi cgraff,

I would love to talk with you and help you out any way I can. What you you like to know or have help with?

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