Nocturnal seizure

[LyFrazier]

I think i awoke having a seizure. My head was going forward to back very quickly. Then a quick shudder before i opened my eyes. My heart rate was 80 bpm when i checked my fitbit. A few nights prior i awoke with extreme muscle soreness in neck. Anyone else experience this?

[cgarff]

Hello LyFrazier, I have totally been in your place. Unfortunately I cannot say for sure if it is a seizure or not because a year ago I was diagnosed with both non-epileptic and epileptic seizures. (IGE) Ideopathic Generalized Epilepsy in addition to (FND Functional Neurologic Disorder.) Yet to me, everything I experience feels the same to me. I wake up when I am having them, what part of my body varies, my speech is totally messed up, so is walking and moving etc. I dont lose consciousness which baffles my Neuro. I am aware of all 5 senses when these happen, and it kicks my butt the next day. As of lately I have just learned to try and sleep through them more because they were happening so often I have just become used to them. Before I was diagnosed every doc I saw just chalked them up to NES, until I pushed for more testing at night because the EEG during the day was normal, but night was when I was having them the most. So they did a 3 day ambulatory EEG and low and behold I was right, it wasnt just NES, but both. I am on 4 different meds now that have reduced the number but not completely. If you want to chat more and compare notes let me know,

Cheryl

[LyFrazier in reply to cgarff]

My gp was already referring me to mayo clinic in jacksonville for vasovagal syncope with orthostatic hypotension, when i became aware of a night time seizure. She really wants me to be seen by a neurologist at mayo. I requested an appt. Today. I am curious if these are related.

[LyFrazier in reply to LyFrazier]

Update, mayo clinic reveiwed my records and determined the "episodes" ive experienced for 18 months are actually awake focal vasovagal syncope seizures during the day! I see them june 11 to find out why all these seizures just started and get treatment.

[LyFrazier in reply to LyFrazier]

The daytime seizures dont have the convulsimg that tje nighttime seizures cause. Maybe i have 2 different kinds also.