Epilepsy Action | HealthUnlocked

Epilepsy Action

3,021 members • 1,130 posts

Benefit shake up

Hi, I dont know what other people are thinking but sunaks proposal has caused some distress, anxiety is coming through the walls for me, im unstable at best,...

Hi, I dont know what other people are thinking but sunaks proposal has caused so...

•2 days ago

myoclonic absence epilepsy

My son (now 15) was diagnosed about a year ago, on Lamotrogine. We are constantly increasing his dosage, it makes him extremely tired and he is still having...

My son (now 15) was diagnosed about a year ago, on Lamotrogine. We are constantl...

•1 month ago

I just want to talk to someone who understands

I'm really struggling with everything epilepsy related at the moment. I was having my 1 to 1 chats with a volunteer through Epilepsy Action and that was more...

I'm really struggling with everything epilepsy related at the moment. I was hav...

•1 month ago

Fix medicine supply chain or risk patients’ lives, warn charities

Charities and pharmacists are calling for a complete review of the medicine supply chain as shortages continue to put people’s health at risk. Epilepsy...

Charities and pharmacists are calling for a complete review of the medicine supp...

EpilepsyAction1

Partner•9 days ago

starting lamotrogine and side evfects

Hello folk, my husband ( age 69) was recently diagnosed with epilepsy and prescribed lamotrogine. Waiting for MRI and first outpatient appointment. We’re now...

Hello folk, my husband ( age 69) was recently diagnosed with epilepsy and presc...

•1 month ago

Colds and epilepsy

My husband has passed on his cold to me. I started with a tickly cough, now nose is bunged up, coughing is rattly, more so on the right side and head feels...

My husband has passed on his cold to me. I started with a tickly cough, now nose...

•28 days ago

New drug

Hello, My son has recently been prescribed Zonisamide. His epilepsy has not been controlled with other drugs although both Lamotrigine and Oxcarbazepine kerbed...

Hello, My son has recently been prescribed Zonisamide. His epilepsy has not been...

LakeshoreDriveKing

•1 month ago

Low carb for epilepsy

I've been having a chat with my epilepsy nurse about trying a low carb diet. She is happy for me to give it a go and says some people find it reduces the...

I've been having a chat with my epilepsy nurse about trying a low carb diet. She...

TheCoulerPurple

•6 days ago

new symptoms

Back in February I had to do another change in prescription for my epilepsy medication. Ever since I finished it back in March the eight week cycle I’ve had...

Back in February I had to do another change in prescription for my epilepsy medi...

•14 days ago

new symptoms

Back in February I had to do another change in prescription for my epilepsy medication. Ever since I finished it back in March the eight week cycle I’ve had...

Back in February I had to do another change in prescription for my epilepsy medi...

•14 days ago

London Marathon 2024: Meet team Epilepsy Action

Catrin Jones, 26, from Caernarfon in Wales, is running for her daughters Esmi, 5, and Nanw, 3, who have both been diagnosed with epilepsy. Learn more here...

Catrin Jones, 26, from Caernarfon in Wales, is running for her daughters Esmi, 5...

EpilepsyAction1

Partner•7 days ago

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Lacosamide increase

Last night was the 3rd night of increasing lacosamide. It doesnt seem to be agreeing with me as each night since i go to bed with a terrible headache and this...

Last night was the 3rd night of increasing lacosamide. It doesnt seem to be agre...

•21 days ago

Talk and Support Virtual Groups

Our online Talk and support groups are a great way of connecting with others who have experiences of epilepsy, in a safe and relaxed environment. We have our...

Our online Talk and support groups are a great way of connecting with others who...

EpilepsyAction1

Partner•1 month ago

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About us

Epilepsy Action is a peer support community run by the Epilepsy Action charity. We are a community of committe...

Read more about Epilepsy Action

http://www.epilepsy.org.uk/

Freephone 0808 800 5050

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