Must be my time of life, dreams of past ti... - Epilepsy Action

Epilepsy Action

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Must be my time of life, dreams of past times, usually bad ones coming back? I've had J.M.Epilepsy since 14 now aged 68, "nightmares"?

Adlon57 profile image
3 Replies

I'm in reality terminally ill, no specific time, brain damage/broken skull and untreatable rib cage structure caused by effects of epileptic seizures but now getting these 'flash' dreams of past episodes, not very nice, periods of time I could not remember due to effects of epilepsy medications.

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Adlon57 profile image
Adlon57
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NicEllaDawn profile image
NicEllaDawn

I feel for you Adlon57 its hard living with epilepsy! I have lived with it all my 36 years of life and I find life a struggle! Doing daily tasks can be hard and the pain that comes after each of my tonic clonic and myoclonic seizures can be horrendous and I suffer with Todds Paresis as well which makes my life a battle. My epilepsy is catamenial which is not nice for me and it makes life a real challenge! I have autism and learning difficulties which were caused by my epilepsy which I have had since birth! I am also a schizophrenic and asthmatic which means life is a battle especially as my schizophrenia is not able to be medically controlled because of my epilepsy! I am having to deal with the voices in a different way by using distractions away from them!

Adlon57 profile image
Adlon57 in reply toNicEllaDawn

Thanks👍 life with epilepsy as you know has not changed much, feeling sorry for close friends and family who realise what I am going through, the ignorance in 1970 is still there, maybe better disguised, dare I say it, my last years coming up, but could be the best of my life, moving house, now close to the centre of town/city which I live in, my broken skull, from double seizure in Jan 2018, meant that I was confined to my two storey semidetached house, I can't walk most inclines, transport has been very limited, with claustrophobia not ideal, but I'm a stubborn retired old git, always fighting for any breakthrough, I'm a qualified cook , did the class at a local tech. [embarrassing top of the class] but I knew I would be living on my own that's forty years ago, and a 'person' with epilepsy, cooking that's a 'no-no!' My GP calling me a "one off" he's a good friend, saved me a couple of times! I have Schwannomatosis or NF3, an off shoot of Neurofibromatosis, the only one in UK with the condition, but the number of misdiagnosis's I've had with that🙄 the usual stuff, trying to fit me into their little regular boxes🤬 well I just don't fit 😝

NicEllaDawn profile image
NicEllaDawn in reply toAdlon57

Its ok my friend I dont exactly fit into all the boxes for everything either! I have been told as I said that I have Todds Paresis but even though the paralysis only occurs for a certain amount of time like half a day to 36 hours and usually occurs after I have had a lot of seizures it usually occurs after three to four hours sometimes up to six hours after my last seizures so I am not sure my symptoms fit for that properly really!

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