epilepsy and restless leg syndrome - Epilepsy Action

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epilepsy and restless leg syndrome

Heather-rose profile image
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I’m just wondering is there a link between RLS and epilepsy? My parents had RLS as do I and my siblings. My husband occasionally gets it too. There’s no history of epilepsy in either of our families but our daughter has started having tonic clonic seizures in her early 20’s, she has never drank , smoked or taken drugs. She’s had no head injuries but has suffered migraines since being a child. As RLS is a neurological disorder I’m wondering if there is a link?

She had two seizures two hours apart a year and seven months ago that came out of the blue. She had another one last weekend which was a nocturnal one that lasted 4 minutes. We phoned an ambulance but because we are very rural they told us to get the defibrillator and got to us two hours later. She was in a postical state for 20 minutes. The GP has prescribed buccolan to be used with the advice of 999 if she has another seizure lasting 5 minutes or more.

We are waiting on an urgent appointment with a neurologist but the GP did say that that might take a while because of the state the NHS is in. She did see a neurologist last time and had a sleep deprived EEG. He said via a phone appointment, that there was a tiny blip at the back of brain as she fell asleep but suspected that she wouldn’t have another seizure. We have tried to contact him to find out more but he never responded to our emails, his secretary doesn’t respond back either. Hopefully we’ll be referred to a different neurologist this time.

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Heather-rose
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Mouse80 profile image
Mouse80

I get this my leg wants to kick out for no reason at all i thought it was my medication but not sure let me know if you find out what it is xx take care

EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Hi Heather Rose

Thank you for your post. It is possible for someone to develop epilepsy when there is not a family history. In fact most people with epilepsy have no family history.

epilepsy.org.uk/info/newly-...

epilepsy.org.uk/info/geneti...

We are not aware of a connection between restless leg syndrome and epilepsy. But I did find the following small studies on this and they are saying there may be a connection:

pubmed.ncbi.nlm.nih.gov/281...

link.springer.com/article/1...

I hope you hear from more people in this community soon. But if you wish to reach a larger audience, you could try some of our other services:

Facebook facebook.com/epilepsyaction

Twitter twitter.com/epilepsyaction

Talk and Support epilepsy.org.uk/talk-and-su...

Regards

Diane

Epilepsy Action Helpline Team

Heather-rose profile image
Heather-rose in reply to EpilepsyAction1

Thank you

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