Worsening right side feeling - Todd's Paresis?, ?nocturnal seizures

[LottieLou96]

Heya guys,

I don't know of many of you have experienced limb weakness that prolongs most of the post ictal period?

I've recently been diagnosed with epilepsy, after numerous complex partial seizures and auras in clusters that generally lead me to blackout. And an MRI showing areas of damage in the right frontal lobe and left parieto temporal region.

Over the last year and even the last month, my right side is getting increasing episodes of prolonged weakness and poor feeling.

I'm still waiting for my prescription to come in to my GP for Lamotrigine. So I'm a bit in no man's land waiting for some help to reduce these issues hopefully.

I also wonder if I have nocturnal seizures, but I live on my own so I just don't know. As a kid, my mum did use to wake me up often complaining I had stopped breathing and had episodes of unconsciousness. But I never thought anything of it.

Likewise with injuries, it was always a joke that the bedroom was a dangerous place, as I would wake with bruises, fall off the bed, even broke my wrist and arm on the bed somehow. But I am a sleep walker and vivid dreamer so I thought it might be me acting it out. But all day since awaking this morning at 2.45am my right arm is just so weak and it's just taking a long time to improve.

Can it take this long? And how would I find out if I'm having other episodes.

Lottie

[hope_is_good]

Hi I have epilepsy and FND and I quite often get limb weakness after seizures

[EpilepsyAction1 Partner Epilepsy Action]

Hi Lottie

I hope you hear from others on this platform, as sharing information and experiences can be a good idea.

Some people with epilepsy do find they have temporary weakness or can’t move part of their body after they’ve had a seizure. This is called Todd’s paresis or Todd’s paralysis. It can last from a few minutes up to 36 hours, before going away. But there could also be other reasons for experiencing limb weakness.

It’s also possible, from what you have described, that you may have had seizures in your sleep. But we are not medically trained and so can't say for sure.

It would be a good idea to speak to your doctor or epilepsy specialist about your concerns. They may arrange for you to have some tests to see if you are having seizures in your sleep. And they should be able to advise around the limb weakness you are experiencing.

We have some information about epileptic seizures on our website as well as information for people who are newly diagnosed that you might find helpful to read through.

It could also be helpful to look our other services?

We have our virtual talk and support groups epilepsy.org.uk/virtual-groups. We have our forum4e online community epilepsy.org.uk/search/goog..., and we are on facebook facebook.com/epilepsyaction and twitter twitter.com/epilepsyaction.

Finally, please feel free to contact our helpline team. You can either email [e-mail] or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5pm and Saturday 10am until 4pm.