Got 6 day video EEG results yesterday and the seizure I had during my stay was not picked up as the consultant said it likely did not last long enough. I have simple partial seizures mostly sensory and left sided. It lasted about 1-2 mins. This was my 2nd hospital stay video EEG but the first with reduction of medication. He has suggested another video EEG stay as he wants to pick a seizure up for going forward with treatment. I have had epilepsy since 2007 and on medication since 2009. There are so many questions going through my head. One being, what if they are not seizures, then what are they? I put this to my consultant and he was unable to answer. I don't know if I can wait a year (by the time the EEG is done again and results are through) it look over a year since the last referral was made due to the waiting list etc. I am so tempted to come off the medication. He explained to me he has a few other patients in the same situation due to the type of epilepsy being hard to detect.
Anyone on here been in the situation?