Good morning guys,
I was diagnosed with temporal lobe epilepsy in July 2014, I suffered from about 30 attacks before then. I started taking Levetiracetam as of August '14 which has kept me ‘seizure free’. I was so chuffed to get my driving licence back last year!
A run down on what my seizures consist of: almost remembering something, a familiar sound or smell or memory – deja vu style, which turns in microseconds to a realisation of impeding danger is about to happen. I get a wave or rising feeling through my body and it feels static-y – usually time to go “oh crap” or something as I know whats coming next. At this stage I try to get down low, sit down and get into a brace position. As the next step is like a huge electric pulse or as I would image defibrillator to feel but it starts from my left side of my brain then shocks throughout the rest of my body. This lasts for anything between 30 seconds – 2 mins and I remain conscious throughout. Afterwards I have a metallic taste in my mouth, confused, scared, cannot articular and do non-sensical things like sit at a desk knowing I need to use a mouse so just lift it up and moved side to side as I cannot quite engage….
So the reason for me writing today, is that in the last few months I keep getting the deja vu part (impeding danger, rising, static) – so it feels like a seizure is going to happen but then thankfully it stops and never goes into the nasty electrical bit due to the medication. I just pause, almost like waiting for it to happen then just carry on with what I'm doing. BTW I never have these driving, that is my best time of day as I am completely engrossed and focused, which is one of my favourite parts of the day. I have my next neurology review next month (it's been a year since the last) so in prep I’m hoping to understand whether anyone else gets these little ‘blips’ (not sure what to call them) and what may get suggested. I take x1 250mg in the AM and x2 in the PM. I’m scared that if I go up it may stop this but will I suffer in other ways? I don’t want to become numb completely, I already feel like I’m a bit ‘slower’ than I used to be, not quite as switched on, articulate (slur, repeat or forget words in sentences), a bit dyslexic (so apologies for this message!). But I don’t know whether that’s the epilepsy or the drugs. When I started the meds I really struggled going from x2 to x3 a day because I didn't feel like me anymore. But I don't think I want to move drugs as I know this does work and doesn't give me any really nasty side effects. I do also worry about any last effects these blips may have on my physical body also...
Any comments or thoughts highly welcome. I would love to hear from anyone with the same form and similar experiences.
Sorry for the long message, I appreciate those who take the time to read