New to here - Epilepsy help

Hi all, im new to the site and was looking for help regarding epilepsy. My boyfriends daughter, who lives with us, has the condition and at the moment i am struggling. She is 8 years old and we haven't yet managed to find the correct meds for her. I dont know how to deal with her condition as i find im constantly on edge. Any tips on how to deal with everything?

2 Replies

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  • Hi there,

    Welcome to the site. It sounds like you’re going through a really worrying time at the moment. There are lots of different epilepsy medicines available and it can take a while to find the right one at the right dose. But once it’s found, your boyfriend’s daughter stands a very good chance of being seizure free.

    It’s natural to feel anxious when a child in your family has epilepsy. Some people find learning more about epilepsy and the different types of seizures helps them feel more in control. epilepsy.org.uk/info/basics

    We’ve also got lots of information on children with epilepsy, including sources of information and support for parents and carers. epilepsy.org.uk/info/childr...

    Has anyone told you what to do if she has a seizure? If not, learning what to do is a really good way to feel more confident and prepared. We’ve got information on our website on first aid for seizures including videos showing what to do. epilepsy.org.uk/info/firstaid

    Finally, if your boyfriend’s daughter has any questions about her epilepsy you could look at our children’s website with her. kids.epilepsy.org.uk/

    I hope this information is useful. If you have any questions please feel free to call the Epilepsy Action Helpline on freephone 0808 800 5050.

    Grace

    Advice and Information Team

  • Thank you for replying. Well she was on Keppra for a couple of years and then it stopped working for her so as of last week she has started on Epilim. She has focal seizures which tend to happen during the night which in itself is really scary. Im trying to cope by coming on here and knowing we are not alone in this but i just find i cant find any relaxation at all. Constantly thinking the worst and wondering how it will effect us going forward

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