Coming back home on the bus from a failed interview, I had 1 of my seizures as I remember a street name & then nothing much for a few mins after, I was well & truly confused, didn't know what time it was, where I was on the bus let alone on the route, in the end a very kind female passenger said what town we were coming into as overheard my conversation to my husband
He had to meet me @ the bus stop near to where we live as I was so sure that I was gonna end up missing it & end up @ the end of the route in the nearby town, possibly had a 2nd seizure as well as next thing I remember us coming into the village before the 1 we live in, prior to that turning down the road to head that way & yet again confused
7 Replies
•
My heart goes out to you, that must have been so scary & upsetting for you.
Do you plan to make an appointment with your neurologist? To discuss your options.
I find due to my medication it dehydrates me, (constant dry mouth) so I always have a bottle of water with me. And I do you yoga & walking to try keep me less anxious.
Your husband sounds very supportive, Take care X. SJ
• in reply to
He's xtremely supportive & yes it was the most scary thing ever, has kinda put me off doing long trips on public transport without another person I know with me
Yes as he didn't wanna see me until next mnth, so we're gonna discuss that plus the increase of my seizures with him & see what he says, he's understanding like the 1 before was
• in reply to
Hi can I ask what medication you are currently on?
For your info I take Keppra, Zonisamide & Clobazam 😄(one has to smile) still a balancing act as my meds have effected my bone density so now take calcium/D prescription! Which is one of the side effects but Not stated on the info leaflet!! I’m always thirsty are you? Take care X SJ
• in reply to
The full list of tablets I'm on is: Quetiapine, Mebeverine, Mirtazapine, Stemetil, Topiramate, Cinnarizine & Clopidogrel
• in reply to
Primidone is on the list & Zonisamide is also known but you have to look this one up differently as my GP & neurologist informed me!!
• in reply to
You should be ok but check with your neurologist or gp as it isn’t stated on the drug leaflet info under side effects.
X SJ
• in reply to
I get like that after a seizure, all confused as mine are the absent type, but also suffer from night seizures. Thankfully, so far I ain't had no more since then, but I never know when I'll have 1 until I do
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Where can I get help?
Help?
How do you find a good Epileptologist?
Life changing 😞
I suffer from uncontrolled epilepsy and wrote a poem that might resonate and help a few others, not feel alone. As I do at times. Have hope.